Sources

The bibliography and verified owner projections underpinning this wiki. Every cited claim traces to a source listed here. 293 entries total, grouped by type below.

Last updated: 2026-10-05.

Reports & surveys (43)

• 2026 Top 10 Health Technology Hazards (2026) — ECRI Institute
• Coverage Appeals (2026) — Centers for Medicare & Medicaid Services
• 2025 Report — State of the Grandfamilies and Kinship Care Report (2025) — Generations United
• AI-Powered Rules as Code (2025)
• America''s Unseen Workforce: The State of Family Caregiving (2025) — Columbia University
• APA Health Advisory on the Use of Generative AI Chatbots and Wellness Applications for Mental Health (2025) — American Psychological Association
• Caregiving in the US 2025 (2025) — AARP, National Alliance for Caregiving
• Caregiving in the US 2025: Caring Across States (2025) — National Alliance for Caregiving, AARP
• Exploring Rules Communication: Moving Beyond Static Documents to Standardized Code for U.S. Public Benefits Programs (2025) — Beeck Center at Georgetown University
• Strategies and Interventions to Strengthen Support for Family Caregiving (2025) — National Academies of Sciences, Engineering, and Medicine, Board on Health Care Services
• The Future of Connected Care: Enabling Healthy Longevity and Aging at Home (2025) — Dunning L, Rossano J
• The State of FamTech 2025: Insights from Founders, Investors & Collaborators (2025) — FamTech.org
• Understanding the OPTN Modernization Initiative & Implications for Caregivers (2025) — National Alliance for Caregiving
• 2024 Report to Congress: Progress on National Strategy to Support Family Caregivers (2024) — Administration for Community Living (ACL)
• A Home Care Benefit for Medicare (2024) — Brookings Institution
• ALS_One_Pager_Caregivers.pdf (2024) — National Academies of Sciences, Engineering, and Medicine
• Caring for Tomorrow: A Guide to Investing in the Care Economy (2024) — Eppanapally P, Ngunga S (Women of the World Endowment), Bussman-Wise J (Tesser Capital Management)
• Gaps and Opportunities: Family Caregiver Programs in U.S. Transplant Centers (2024) — National Alliance for Caregiving (Reid KG, Mitchell H-R)
• National Strategy to Support Family Caregivers: Progress & Impact Report (2024) — NASHP (National Academy for State Health Policy)
• Stranded by the Safety Net: How to Fix the Benefit Cliff Problem (2024)
• Working while caregiving: It's complicated (2024) — S&P Global; AARP
• AI and the Future of Care Work: The Rise of the AI Caregiver (2023) — Laurie M. Orlov
• Economic Impacts of Programs to Support Caregivers: Final Report (2023) — Urban Institute
• Making Care Pop: What We See and Don''t See About Caregiving on TV (2023) — Geena Davis Institute on Gender in Media; Caring Across Generations
• Transplant Caregiving in the U.S.: A Call for System Change (2023) — National Alliance for Caregiving (Cothran F, Mitchell H-R, Montoya Y, Tokarewich L)
• Caregivers in the Workplace (2022) — New York State Office for the Aging; New York State Department of Labor
• Caregiver Guide (2021) — New York State Department of Health
• Family Caregiver Domains of Preparedness (2021) — Family Caregiving Institute
• Family Caregivers Experience High Out-of-Pocket Costs (2021) — AARP
• From Caregiver to Caregiver: The Wisdom and Insights of Former NFCSP Caregivers (2018) — Administration for Community Living, New Editions Consulting, Lewin Group
• Family Caregiver Support Program: Final Report (2016) — Administration for Community Living, Lewin Group
• Draft Final Report for the Evaluation of Select Consumer, Program, and System Characteristics under the Supportive Services Program (Title III-B) of the Older Americans Act (2007) — Rabiner DJ, Wiener JM, Khatutsky G, Brown DW, Osber DS (RTI International)
• ALS_One_Pager_Veterans.pdf
• Caregiving for Family and Friends — A Public Health Issue
• Family Caregivers: Examining caregiver characteristics, caregiving support, and other caregiving dynamics that differ between short term and long term caregivers
• Including Family Caregivers in Emergency Response Planning and Preparedness — USAging
• Interprofessional Family Caregiving Competencies — Sexson KE et al., Family Caregiving Institute, Betty Irene Moore School of Nursing at UC Davis
• National Strategy to Support Family Caregivers — U.S. Department of Health and Human Services
• Research Priorities in Caregiving Summit: Advancing Family-Centered Care across the Trajectory of Serious Illness — Family Caregiving Institute, Betty Irene Moore School of Nursing at UC Davis
• Resources for Enhancing Alzheimer's Caregiver Health II — Administration for Community Living
• Transportation Options for Older Adults and People with Disabilities — National Aging and Disability Transportation Center (NADTC), Eldercare Locator
• Your Discharge Planning Checklist — Centers for Medicare & Medicaid Services
• Your Guide to Choosing a Nursing Home — Centers for Medicare & Medicaid Services

Research papers (61)

• Family caregivers' acceptance of Artificial Intelligence-enabled technologies for providing care to older adults (2026)
• Intent Mismatch in Multi-Turn Conversations (2026) — Liu et al.
• Mapping Caregiver Needs’ Assessment Tools for Family and Friend Caregivers: A Rapid Scoping Review (2026) — Ding X et al.
• Psychometric Validation of the Caregiver Preparedness Scale in a Population-Based Sample (2026) — Jiri Remr
• SimpleMem: Simple Yet Effective Memorization with Extractive Retrieval (2026) — SimpleMem Authors
• The Role of Forgiveness Between Dysfunctional Thoughts and Anxiety in Older Adults' Family Caregivers (2026) — Javier López, María Dolores Ortiz, Cristina Noriega
• The Slow Drift of Support: Boundary Failures in Multi-Turn Mental Health LLM Dialogues (2026) — Cheng, M. et al.
• A Neuro-Symbolic Framework for Accountability in Algorithmic Decision-Making (2025) — arXiv:2512.12109
• A Pilot Trial Evaluating Collaborative Healthcare Encounters with Caregivers: A Checklist-based Intervention for Primary Care (2025) — Catherine Riffin, Lilla Brody, Jennifer L. Wolff, Karl Pillemer
• AI-Caregiving and AI-Health Research (arXiv preprints, 2022–2025) (2025) — Various
• Chameleon: Stance Shifting in LLM Responses (2025) — Chameleon Authors
• Companionship to Mediationship: AI Mediation Between Caregivers and Systems (2025) — ACM DIS 2025
• Drift No More? Context Equilibria in Multi-Turn LLM Interactions (2025) — Dongre et al.
• Encoding Inequity: Examining Demographic Bias in LLM-Driven Robot Caregiving (2025)
• Lost in Conversation: Long-Context Unreliability in LLMs (2025) — Laban et al.
• Mapping Caregiver Needs to AI Design (2025) — Shi et al.
• PluralisticBehaviorSuite: Stress-Testing Multi-Turn Adherence to Custom Behavioral Policies (2025) — PBSuite Authors
• Technological folie à deux: Feedback Loops Between AI Chatbots and Mental Illness (2025) — Dohnany et al.
• The Psychogenic Machine: Simulating AI Psychosis, Delusion Reinforcement and Harm Enablement in Large Language Models (2025) — Au Yeung et al.
• Trauma-Informed Content Design (2025) — Legawiec, K.
• Association of Safety-Net Program Participation with Government Perceptions, Welfare Stigma, and Discrimination (2024) — Health Affairs Scholar
• Behavioral and Psychological Symptoms in Dementia (2024) — Nancy Cloak; Caroline Schoo; Yasir Al Khalili
• Belonging Without Othering: How We Save Ourselves and the World (2024) — powell, john a. & Menendian, S.
• European Academy of Neurology (EAN) guideline on the management of amyotrophic lateral sclerosis in collaboration with European Reference Network for Neuromuscular Diseases (ERN EURO-NMD) (2024)
• Fostering AI-Based Supports for Informal Caregivers: A Systematic Review (2024) — Milella, F. & Bandini, S.
• Randomized controlled trials on promoting self-care behaviors among informal caregivers of older patients: a systematic review and meta-analysis (2024) — BMC Geriatrics
• Who Do We Become When We Talk to Machines? (2024) — Sherry Turkle
• Care Is a Relationship (2023) — Anne-Marie Slaughter
• MemGPT: Towards LLMs as Operating Systems (2023) — Packer, C. et al.
• Responses of Persons Living With Dementia to Caregiver Validating Communication: A Secondary Analysis (2023) — Campbell KM, Coleman CK, Williams K
• Cognitive reframing for carers of people with dementia (2022) — Vernooij-Dassen M, Draskovic I, McCleery J, Downs M
• Development and Evaluation of the Eight-Item Caregiver Self-Efficacy Scale (CSES-8) (2022) — Ritter PL, Sheth K, Stewart AL, Gallagher-Thompson D, Lorig K
• Guilt Focused Intervention for Family Caregivers (2022) — Romero-Moreno R, Márquez-González M, Gallego-Alberto L, Cabrera I, Vara-García C, Pedroso-Chaparro M del S, et al.
• Peer Support Research: Navigation, Not Treatment (2022) — Joo, Y. K. et al.
• Disability as an Interpersonal Experience: A Systematic Review on Dyadic Challenges and Dyadic Coping When One Partner Has a Chronic Physical or Sensory Impairment (2021) — Isabella C. Bertschi, Fabienne Meier, Guy Bodenmann
• Knowledge Graphs for Social Good: Protecting Vital Health and Social Programs (2021)
• Pre‐loss group therapy for dementia family care partners at risk for complicated grief (2021) — Katherine P. Supiano, Troy Andersen, Marilyn Luptak, Cynthia Beynon, Eli Iacob, Sarah Elizabeth Levitt
• Results of a Randomized Trial Testing the Efficacy of Tele-Savvy, an Online Synchronous/Asynchronous Psychoeducation Program for Family Caregivers of Persons Living with Dementia (2021) — Kally Z, et al. / Emory University
• A Problem-Solving Intervention for Hospice Family Caregivers: A Randomized Clinical Trial (2019) — Demiris G, et al.
• iSupport: a WHO global online intervention for informal caregivers of people with dementia (2019) — Pot AM, et al.
• Communication training and its effects on carer and care-receiver outcomes in dementia settings: A systematic review (2018) — Nguyen H, Terry D, Phan H, Vickers JC, McInerney F
• Screening for caregivers at risk: Extended validation of the short version of the Burden Scale for Family Caregivers (BSFC-s) with a valid classification system for caregivers caring for an older person at home (2018) — Pendergrass A, Malnis C, Graf U, Engel S, Graessel E
• A critical review of scoring options for clinical measurement tools (2015) — Avila ML, Stinson J, Kiss A, Brandão LR, Uleryk E, Feldman BM
• Development of the Carers’ Alert Thermometer (CAT) to identify family carers struggling with caring for someone dying at home: a mixed method consensus study (2015) — Knighting K et al.
• Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer) (2015) — Rand SE et al.
• Subjective caregiver burden: validity of the 10-item short version of the Burden Scale for Family Caregivers BSFC-s (2014) — Graessel E, Berth H, Lichte T, Grau H
• The Caregiver Well-Being Scale: Developing a Short-Form Rapid Assessment Instrument (2013) — Tebb SC, Berg-Weger M, Rubio DM
• Does a Family Meetings Intervention Prevent Depression and Anxiety in Family Caregivers of Dementia Patients? A Randomized Trial (2012) — Joling KJ, van Marwijk HWJ, Smit F, van der Horst HE, Scheltens P, van de Ven PM, Mittelman MS, van Hout HPJ.
• Effectiveness of Family Meetings for Family Caregivers on Delaying Time to Nursing Home Placement of Dementia Patients: A Randomized Trial (2012) — Joling KJ, van Marwijk HWJ, van der Horst HE, Scheltens P, van de Ven PM, Appels BA, et al.
• Alone Together: Why We Expect More from Technology and Less from Each Other (2011) — Turkle, S.
• Family and Friend Participation in Primary Care Visits of Patients with Diabetes or Heart Failure: Patient and Physician Determinants and Experiences (2011) — Ann-Marie Rosland, John D. Piette, HwaJung Choi, Michele Heisler
• Spouses, Adult Children, and Children-in-Law as Caregivers of Older Adults: A Meta-Analytic Comparison (2011) — Martin Pinquart, Silvia Sörensen
• Powerful Tools for Caregivers (2010) — Lorig K, et al.
• Targeting and managing behavioral symptoms in individuals with dementia: a randomized trial of a nonpharmacologic intervention (2010) — Laura N. Gitlin, Laraine Winter, Marie P. Dennis, Nancy Hodgson, and Walter W. Hauck
• Can Counseling and Support Reduce Alzheimer's Caregivers' Burden and Depressive Symptoms during the Transition to Institutionalization? Results from the NYU Caregiver Intervention Study (2006) — Mittelman MS, et al.
• Redressing Inequity in Parent Care Among Siblings (2003) — Berit Ingersoll-Dayton, Margaret B. Neal, H. A. Jung-Hwa, Leslie B. Hammer
• Validation therapy for dementia (2003) — Neal M, Barton Wright P
• The Caregiver Well-being Scale Revisited (2000) — Berg-Weger M, Rubio DM, Tebb SS
• Mutuality and Preparedness as Predictors of Caregiver Role Strain (1990) — Patricia G. Archbold, Barbara J. Stewart, Merwyn R. Greenlick, Theresa Harvath
• Family Caregiver Skills Training to Improve Experiences of Care: a Randomized Clinical Trial — Van Houtven CH, et al.
• Measuring the impact of caregiving on informal carers: a construct validation study of the CarerQol instrument — Hoefman RJ et al.

Academic literature (18)

• Assessment of Daily Function and Neuropsychiatric Symptoms of Dementia in Practice (2025) — Bradford C. Dickerson, MD
• Caregiving in Dementia: Impact, Consequences & Opportunities (NYU Caregiver Intervention) (2025) — Mary S. Mittelman, DrPH
• Harvard Medical School Dementia: A Comprehensive Update — 2025 CME Course (2025) — Multiple faculty — Harvard Medical School / Mass General Hospital
• PROMIS Healthcare Access Satisfaction (2025) — PROMIS Health Organization
• PROMIS Illness Burden (2025) — PROMIS Health Organization
• PROMIS Anxiety (2023) — PROMIS Health Organization
• PROMIS Self-Efficacy (2021) — PROMIS Health Organization
• Modified Caregiver Strain Index (MCSI) (2013) — Thornton, M.; Travis, S.S.; Hartford Institute for Geriatric Nursing summary sheet
• Assessment and management of behavioral and psychological symptoms of dementia — Helen C. Kales, Laura N. Gitlin, Constantine G. Lyketsos
• Brief Assessment Scale for Caregivers (BASC) — Glajchen, M.
• Mind Care: A Clinically and Ethically Informed Approach to the Care of Persons Living with Neurodegenerative Diseases — Jason Karlawish, MD
• PROMIS Companionship — PROMIS Health Organization
• PROMIS Depression — PROMIS Health Organization
• PROMIS Fatigue — PROMIS Health Organization
• PROMIS General Life Satisfaction — PROMIS Health Organization
• PROMIS Meaning and Purpose — PROMIS Health Organization
• PROMIS Social Isolation — PROMIS Health Organization
• Zarit Burden Interview — Zarit, S.H. et al.

Statutes & regulations (11)

• AB406_EN.pdf (2025) — Nevada State Legislature
• California SB 243 (2025) — California State Legislature
• HB0452 (2025) — Utah State Legislature
• Maine 10 Section 1500-DD (2025) — Maine State Legislature
• New York Article 47 (GBS 1700) (2025) — New York State Legislature
• EUR-Lex - 02024R1689-20260727 - EN - EUR-Lex (2024) — European Parliament and Council of the European Union
• SB24-205 Consumer Protections for Artificial Intelligence | Colorado General Assembly (2024) — Colorado General Assembly
• Bill Text - AB-3030 Health care services: artificial intelligence. (2023) — California State Legislature
• FDA General Wellness Framework (2023) — U.S. Food and Drug Administration
• 42 CFR Part 431 Subpart E -- Fair Hearings for Applicants and Beneficiaries — Centers for Medicare & Medicaid Services, Department of Health and Human Services
• Public Act 0054 104TH GENERAL ASSEMBLY — Illinois General Assembly

Frameworks & standards (17)

• Belonging: A Resource Guide for Belonging-Builders (2025) — Gallegos, A. & Surasky, C. / Othering & Belonging Institute, UC Berkeley
• Benefits Playbook: Designing Human-Centered Applications (2024)
• TIDS Framework: Trauma-Informed Digital Safeguards (2024) — TIDS Framework Authors
• A Framework for Integrating Family Caregivers into the Health Care Team (2020) — Friedman, E. M. & Tong, P. K. / RAND Corporation
• iSupport for Dementia (2019) — World Health Organization
• Targeted Universalism Methodology (2019) — powell, john a., Menendian, S. & Ake, W. / Othering & Belonging Institute, UC Berkeley
• Accountable Health Communities Health-Related Social Needs Screening Tool (2017) — Centers for Medicare & Medicaid Services (CMS)
• Zero Suicide Framework (2015) — Education Development Center (EDC)
• Concept of Trauma and Guidance for a Trauma-Informed Approach (2014) — Substance Abuse and Mental Health Services Administration (SAMHSA)
• The HCBS Taxonomy: A New Language for Classifying Home- and Community-Based Services (2014)
• The Polyvagal Theory (1995) — Porges, S.W.
• The Necessary and Sufficient Conditions of Therapeutic Personality Change (1957) — Rogers, C.R.
• 988 Partner Toolkit — SAMHSA / 988 Suicide and Crisis Lifeline
• AI and Mental Health — National Alliance on Mental Illness
• Caregivers Count Too! - Section 3: Caregiver Assessment Table — Family Caregiver Alliance
• Columbia Suicide Severity Rating Scale — Columbia University
• Introducing CARE — Rosebud AI

Verified owner projections (1)

• GC-SMS Runtime Contract — GiveCare

Websites & practical guides (130)

• ABLE Accounts and Trust Options for Structured Settlements (2026) — ABLE National Resource Center
• Call 211 for Essential Community Services | United Way 211 (2026) — United Way 211
• Chronic Care Management for Complex Conditions (2026) — Centers for Medicare & Medicaid Services
• Contact The Arc of the United States (2026) — The Arc of the United States
• Crisis Text Line (2026) — Crisis Text Line
• Eldercare Locator (2026) — Administration for Community Living / Eldercare Locator
• Family and Medical Leave Act (2026) — U.S. Department of Labor
• Family Caregiver HelpLine (2026) — National Alliance on Mental Illness
• Free 24/7 Alzheimer's & Dementia Helpline (2026) — Alzheimer's Association
• GC-SDOH Assessment Specification (2026) — GiveCare
• Get Help (2026)
• Home & Community-Based Services 1915(c) (2026) — Centers for Medicare & Medicaid Services / Medicaid.gov
• How to Cope When You Are Caregiving for Someone You (Really!) Don't Get Along With (2026) — Bruce Horovitz
• Medicare caregiver training services (2026) — Centers for Medicare & Medicaid Services / Medicare.gov
• Medicare home health services (2026) — Centers for Medicare & Medicaid Services / Medicare.gov
• National Family Caregiver Support Program (2026) — Administration for Community Living
• National Family Caregiver Support Program (2026) — Administration for Community Living
• Patient & Caregiver Resources | STEADI - Older Adult Fall Prevention (2026) — Centers for Disease Control and Prevention
• Poison Help (2026) — America''s Poison Centers
• SAGE USA Contact Information | Contact Us Today (2026)
• Self-Directed Services (2026) — Centers for Medicare & Medicaid Services / Medicaid.gov
• Spotlight on Achieving a Better Life Experience (ABLE) Accounts (2026) — Social Security Administration
• SSA: How much you could get from SSI (2026) — Social Security Administration
• SSA: Who can get SSI (2026) — Social Security Administration
• SSI Spotlight on Trusts (2026) — Social Security Administration
• Supporting ALS Families & Research in New York (2026) — ALS United Greater New York
• The Carer Support Needs Assessment Tool Intervention (CSNAT-I) (2026) — CSNAT-I team
• VA Caregiver Support Program (2026) — U.S. Department of Veterans Affairs
• Wandering and dementia (2026) — Alzheimer's Association
• About Community Living (2025) — Administration for Community Living
• ALS Disability and Medicare Waiting Periods Waived (2025) — Social Security Administration
• Alzheimer's Disease Facts & Figures (2025) — Alzheimer's Association
• ALS Equipment Loan Program | ALS United Greater New York (2024) — ALS United Greater New York
• Caregiver Well-Being Scale – Shortened Version (2024) — University of Connecticut M3EWB Measures Repository
• Caregiving Toolkit (2024) — National Institute on Aging (NIH)
• Emergency Preparedness (2024) — Alzheimer's Association
• Emergency Preparedness | ALS United Greater New York (2024) — ALS United Greater New York
• Support for ALS Caregivers: Resources and Assistance | ALS United Greater New York (2024) — ALS United Greater New York
• Caregiver Burnout (2023)
• Taking Care of Yourself: Tips for Caregivers (2023) — National Institute on Aging (NIH)
• ALS Clinics and Centers (2022) — ALS United Greater New York
• Preventing Falls at Home: Room by Room (2022) — National Institute on Aging
• Caring for Siblings of Kids With Disabilities (2021) — Nemours KidsHealth
• Dick Johnson Is Dead (2020) — The Criterion Collection
• What is a special needs trust anyway? (2020) — Special Needs Alliance
• A Guide for Support Partners (2019) — National MS Society
• Dementia: A Serious Illness (2018)
• Dementia: Improving Care for Family Members (2018) — Administration on Aging / Administration for Community Living
• Glen Campbell''s last song chronicled his struggle with Alzheimer''s disease (2017) — Flock, E. (PBS NewsHour)
• Amour (2012) — Sony Pictures Classics
• Taking Care of YOU: Self-Care for Family Caregivers (2012) — Family Caregiver Alliance
• The Savages (2007) — American Film Institute
• 10 Warning Signs Your Older Family Member May Need Help — Administration for Community Living / Eldercare Locator
• 988 Suicide & Crisis Lifeline — 988 Suicide & Crisis Lifeline
• A Guide to Taking Care of Yourself — Family Caregiver Alliance
• AARP HomeFit Guide — AARP
• ACL-AoA Fact Sheet Template — Administration for Community Living / Eldercare Locator
• Advance Care Plan Considerations — Administration on Aging / Administration for Community Living
• Advance Care Planning: A Conversation Guide — National Institute on Aging
• Aging & Caregiving Studies — Hollywood, Health & Society, USC Annenberg Norman Lear Center
• All Resources — Family Caregiver Alliance
• Alzheimer's Association 24/7 Helpline — Alzheimer's Association
• AT Act Programs — National Assistive Technology Act Technical Assistance and Training Center (AT3 Center)
• Before You Give Up the Keys: Create a Roadmap for Transportation Independence — Eldercare Locator; National Aging and Disability Transportation Center
• Brain Health: Medicine, Age, and Your Brain — Administration on Aging / Administration for Community Living
• Burden Scale for Family Caregivers (BSFC-s) — University Hospital Erlangen
• Care for Advanced Cancer
• Caregiver Action Network — Caregiver Action Network
• Caregiver Navigation Services — USAging
• Caregiver Worksheets — National Institute on Aging
• Caregiver's Guide to Understanding Dementia Behaviors — Family Caregiver Alliance; Beth Logan, M.S.W.
• Caregivers of Cancer Patients — National Cancer Institute
• Caregiving - medication management: MedlinePlus Medical Encyclopedia — MedlinePlus
• Caregiving 101: On Being a Caregiver — Family Caregiver Alliance; Donna Schempp, LCSW
• Caregiving with Your Siblings — Family Caregiver Alliance; Francine Russo
• Caring for Pressure Injuries at Home — Wounds Canada
• Communicating with Your Doctor — Family Caregiver Alliance
• Contact - Patient Advocate Foundation — Patient Advocate Foundation
• Contact HFA — Hospice Foundation of America
• Contact Medicare — Centers for Medicare & Medicaid Services
• Contact Us – Childhelp National Child Abuse Hotline
• Contact Us & Locations — CancerCare
• Coping With Agitation, Aggression, and Sundowning in Alzheimer's Disease
• Falls and Fractures in Older Adults: Causes and Prevention — National Institute on Aging
• Families and Serious Illness
• Family Caregiver Alliance — Family Caregiver Alliance
• Family Caregiver Services by State — Family Caregiver Alliance
• Family Members and Friends — U.S. Department of Health and Human Services, Office for Civil Rights
• Find a Group Near You — Well Spouse Association
• Find Meals and Services — Meals on Wheels America
• Find Support Programs and Services in Your Area — American Cancer Society
• Finding Local Services — Administration for Community Living / LongTermCare.gov
• Hiring In-Home Help — Family Caregiver Alliance; Christine McGuinness
• Holding a Family Meeting — Family Caregiver Alliance; John Neville, MD
• Home — National Council on Aging
• Hospice Care
• Hospital Discharge Planning: A Guide for Families and Caregivers — Family Caregiver Alliance; Carol Levine
• Legal Planning for Incapacity — Family Caregiver Alliance
• Making Our Systems See People — Code for America
• Managing Sleep Problems in Alzheimer’s Disease
• Medication Management Basics — Family Caregiver Alliance; Kathleen A. Cameron, R.Ph., M.P.H.; Ron Finley, R.Ph.
• My ALS Caregiver Journey Roadmap — The ALS Association
• NAMI HelpLine | NAMI
• National Helpline for Mental Health, Drug, Alcohol Issues — Substance Abuse and Mental Health Services Administration
• Next Step in Care: Family Caregivers & Health Care Professionals Working Together — United Hospital Fund
• NY Connects: Your Link to Long Term Services and Supports — New York State Office for the Aging
• Palliative Care
• Preventing Falls and Hip Fractures — Centers for Disease Control and Prevention
• Research | The National Alliance for Caregiving — National Alliance for Caregiving
• Resources for Families and Caregivers — State of New Jersey Disability Information Hub
• Respite Tips: Taking a Break from Giving Care — Family Caregiver Alliance
• State Respite Coalition & Lifespan Respite Grantee Contacts — ARCH National Respite Network & Resource Center
• Supporting ALS Families & Research in New York | ALS United Greater NY
• Take Care of Yourself as a Caregiver — National Institute on Aging
• Taking Care of YOU: Self-Care for Family Caregivers — Family Caregiver Alliance
• Taking Care of Yourself - Advanced Cancer and Caregivers — National Cancer Institute
• Taking Medicines Safely as You Age — National Institute on Aging
• Terms of Service — Crisis Text Line
• The Caregiver's Handbook — National Institute on Aging
• The Father — Sony Pictures Classics
• Treatment of Fecal Incontinence - NIDDK
• Treatments for Sleep Changes
• VA Caregiver Support Program — U.S. Department of Veterans Affairs
• What Does a Cancer Caregiver Do? — American Cancer Society
• What is ABLE? - ABLE National Resource Center — ABLE National Resource Center
• What you need to know — Aging Life Care Association
• When Someone You Love Is Being Treated for Cancer — National Cancer Institute
• When you have urinary incontinence: MedlinePlus Medical Encyclopedia
• Where and How to Dispose of Unused Medicines — U.S. Food and Drug Administration
• Which path is right for me? — Centers for Medicare & Medicaid Services

GiveCare reference notes (6)

• ADR-0001: Crisis Gate Ordering (2026) — GiveCare
• GiveCare Backend Specification (2026) — GiveCare
• GiveCare Market Map (2026) — GiveCare
• GiveCare North Star (2026) — GiveCare
• SMS Mira Soul (2026) — GiveCare
• SMS Voice Guide — GiveCare

Other sources (6)

• HIPAA, SOC 2, and HITRUST Compliance Checklists (2024) — Vanta
• Making Our Systems See People (2022) — Code for America
• PRAPARE Implementation and Action Toolkit (2019) — National Association of Community Health Centers (NACHC)
• Communities in Action: Pathways to Health Equity (2017) — National Academy of Medicine (NAM)
• Patient Advocacy Boot Camp — Alliance of Professional Health Advocates (APHA) and affiliated programs
• Seeking a voice: the inadequacy of the “four principles” and the need for care ethics in the provision of health care to vulnerable populations — Various