The Caregiver's Handbook

National Institute on Aging. "The Caregiver's Handbook."

Key findings used in wiki

• The handbook treats caregiving as a set of coordination problems, not only emotional burden: defining responsibilities, naming a primary caregiver, sharing tasks, and updating the plan as needs change.
• It recommends a caregiving notebook or shared record to keep appointments, contact details, care tasks, and updates visible across helpers.
• It distinguishes helpful long-distance caregiving roles such as remote coordination, financial support, local service setup, and targeted in-person visits.
• It emphasizes that support for the primary caregiver can include respite, emotional support, and taking on specific concrete tasks rather than generic offers to help.