Sickle Cell Disease Adolescent Transition Services Program

Generated from the gc-benefits catalog. It lists what the owner record states. It is not an eligibility decision; confirm current rules with the program.

For adolescents and young adults, age 12 to 21, with sickle cell disease, the Program provides comprehensive care coordination and navigation services.

• Owner record: ny/sickle-cell-disease-adolescent-transition-services-program
• Jurisdiction code: NY
• Frame: care_recipient
• Review by: 2026-11-14
• Authority: The New York State Department of Health, Bureau of Child Health, administers the Program through five Hemoglobinopathy Specialty Care Centers across New York State, including New York City.

Offering 1: care coordination and navigation

Transition Navigators assist adolescents and young adults to schedule and keep medical appointments using reminders, text messaging or home visits; provide support and linkages for the range of health and social supports and services needed ; and provide and reinforce culturally competent educational messages to improve understanding of self-management and preventive health care including non-medical mechanisms for pain management.

• Availability (owner codes): {"intake": "unknown", "type": "unknown"}

Conditions:

• All of these:
• Fact rule: recipient.age ≥ 12
• Fact rule: recipient.age ≤ 21
• Stated condition, not checked automatically: "with sickle cell disease"

Access route 1.1

• Where: The five participating Hemoglobinopathy Specialty Care Centers: Brookdale University Hospital and Medical Center; Cohen Children's Medical Center of New York; Golisano Children's Hospital - University of Rochester Medical Center; New York Presbyterian / Weill Cornell; and Westchester Medical Center.
• How: Contact one of the five participating centers to ask about the Program's services.
• Url: https://www.wadsworth.org/programs/newborn/screening/specialty-care-centers/find

Owner confirmations

• /offerings/0/access/0: sha256:832ff86b3c2de6c63d9c8f4dc802e730d8bbd39838c1adfc0d42dc0becb8cb4a

Evidence

• /name: "The New York State Department of Health, Bureau of Child Health, administers the Sickle Cell Disease Adolescent Transition Services Program (Program) through five (5) Hemoglobinopathy Specialty Care Centers (Centers) across New York State, including New York City. The Program strives to improve the quality of life and health outcomes for adolescents and young adults, age 12 to 21, with sickle cell disease, ultimately resulting in transition to self-care management and adult medical care providers. The Program provides comprehensive care coordination and navigation services. Further, the Centers work with local health department Children and Youth with Special Health Care Needs programs as well as Health Homes for Medicaid-eligible adolescents and young adults to provide ongoing engagement with the healthcare system. The Centers include the following organizations:" (source, capture e92736d2a1889f45f00f4b633736e34cf856eb4eed9e99c339dbee5164a10691)
• /authority: "The New York State Department of Health, Bureau of Child Health, administers the Sickle Cell Disease Adolescent Transition Services Program (Program) through five (5) Hemoglobinopathy Specialty Care Centers (Centers) across New York State, including New York City. The Program strives to improve the quality of life and health outcomes for adolescents and young adults, age 12 to 21, with sickle cell disease, ultimately resulting in transition to self-care management and adult medical care providers. The Program provides comprehensive care coordination and navigation services. Further, the Centers work with local health department Children and Youth with Special Health Care Needs programs as well as Health Homes for Medicaid-eligible adolescents and young adults to provide ongoing engagement with the healthcare system. The Centers include the following organizations:" (source, capture e92736d2a1889f45f00f4b633736e34cf856eb4eed9e99c339dbee5164a10691)
• /caregiving_effect: "The New York State Department of Health, Bureau of Child Health, administers the Sickle Cell Disease Adolescent Transition Services Program (Program) through five (5) Hemoglobinopathy Specialty Care Centers (Centers) across New York State, including New York City. The Program strives to improve the quality of life and health outcomes for adolescents and young adults, age 12 to 21, with sickle cell disease, ultimately resulting in transition to self-care management and adult medical care providers. The Program provides comprehensive care coordination and navigation services. Further, the Centers work with local health department Children and Youth with Special Health Care Needs programs as well as Health Homes for Medicaid-eligible adolescents and young adults to provide ongoing engagement with the healthcare system. The Centers include the following organizations:" (source, capture e92736d2a1889f45f00f4b633736e34cf856eb4eed9e99c339dbee5164a10691)
• /offerings/0/summary: "Centers develop and implement a transition and care management model that uses a health equity lens to promote a successful transition of adolescents and young adults with sickle cell disease to adult health care providers and self-care. Transition Navigators assist adolescents and young adults to schedule and keep medical appointments using reminders, text messaging or home visits; provide support and linkages for the range of health and social supports and services needed ; and provide and reinforce culturally competent educational messages to improve understanding of self-management and preventive health care including non-medical mechanisms for pain management. Centers involve adolescents, young adults, and families in the development of processes, policies and procedures as well as providing ongoing input and involvement in quality improvement initiatives. Centers also develop a system in which adolescents and young adults with sickle cell disease and their families provide peer information and support to other families experiencing sickle cell disease." (source, capture e92736d2a1889f45f00f4b633736e34cf856eb4eed9e99c339dbee5164a10691)
• /offerings/0/rules: "The New York State Department of Health, Bureau of Child Health, administers the Sickle Cell Disease Adolescent Transition Services Program (Program) through five (5) Hemoglobinopathy Specialty Care Centers (Centers) across New York State, including New York City. The Program strives to improve the quality of life and health outcomes for adolescents and young adults, age 12 to 21, with sickle cell disease, ultimately resulting in transition to self-care management and adult medical care providers. The Program provides comprehensive care coordination and navigation services. Further, the Centers work with local health department Children and Youth with Special Health Care Needs programs as well as Health Homes for Medicaid-eligible adolescents and young adults to provide ongoing engagement with the healthcare system. The Centers include the following organizations:" (source, capture e92736d2a1889f45f00f4b633736e34cf856eb4eed9e99c339dbee5164a10691)
• /offerings/0/access/0: "* Brookdale University Hospital and Medical Center - Pediatric Hematology/Oncology (New York)\n* Cohen Children's Medical Center of New York – Pediatric Hematology (New York)\n* Golisano Children's Hospital - University of Rochester Medical Center - Pediatric Hematology/Oncology\n* New York Presbyterian / Weill Cornell Pediatric Hematology/Oncology\n* Westchester Medical Center - Department of Pediatric Hematology/Oncology (Valhalla)" (source, capture e92736d2a1889f45f00f4b633736e34cf856eb4eed9e99c339dbee5164a10691)
• /offerings/0/access/0/url: "The New York State Department of Health, Bureau of Child Health, administers the Sickle Cell Disease Adolescent Transition Services Program (Program) through five (5) Hemoglobinopathy Specialty Care Centers (Centers) across New York State, including New York City. The Program strives to improve the quality of life and health outcomes for adolescents and young adults, age 12 to 21, with sickle cell disease, ultimately resulting in transition to self-care management and adult medical care providers. The Program provides comprehensive care coordination and navigation services. Further, the Centers work with local health department Children and Youth with Special Health Care Needs programs as well as Health Homes for Medicaid-eligible adolescents and young adults to provide ongoing engagement with the healthcare system. The Centers include the following organizations:" (source, capture e92736d2a1889f45f00f4b633736e34cf856eb4eed9e99c339dbee5164a10691)