National Family Caregiver Support Program

Generated from the delivery-benefits catalog. It lists what the owner record states. It is not an eligibility decision; confirm current rules with the program.

Information, assistance and case management; individual counseling, support groups, caregiver training, respite care to provide temporary relief, and limited supplemental services to complement care provided by caregivers.

• Owner record: ny/family-caregiver-support
• Jurisdiction code: NY
• Frame: caregiver
• Review by: 2026-11-29
• Authority: New York State Office for the Aging

Offering 1: caregiver support services

Information and assistance, including case management; individual caregiver counseling, caregiver support groups, and/or caregiver training focused on health, nutrition, financial literacy, decision-making, and problem-solving related to caregiving responsibilities.

• Availability (owner codes): {"intake": "unknown", "type": "unknown"}

Conditions:

• Any one of these:
• All of these:
  • Stated condition, not checked automatically: "Adult family members or other informal caregivers aged 18 and older providing care to an individual(s) aged 60 and older."
  • Stated condition, not checked automatically: "A family caregiver is an adult family member, or another individual, who is an informal provider of in-home and community care to an older individual;"
  • Not:
  • Stated condition, not checked automatically: "For the purpose of these standards, family caregiver does not include individuals whose primary relationship with the older adult is based on a financial or professional agreement."
• All of these:
  • Stated condition, not checked automatically: "Adult family members or other informal caregivers aged 18 and older, providing care to an individual(s) of any age with Alzheimer’s disease or related disorder."
  • Stated condition, not checked automatically: "Related disorders include dementia, traumatic brain injury, mild cognitive impairment, and chronic traumatic encephalopathy."
  • Stated condition, not checked automatically: "A family caregiver is an adult family member, or another individual, who is an informal provider of in-home and community care to an individual of any age with Alzheimer’s disease or related disorder;"
• All of these:
  • Stated condition, not checked automatically: "Older relatives (not the parents) aged 55 and older, living with, and providing care to a child(ren) under the age of 18."
  • Stated condition, not checked automatically: "The older relative caregiver is the grandparent, step grandparent, or other relative (other than the parent) by blood, marriage, or adoption, of the child. They are the primary caregiver of the child because the biological or adoptive parents are unable or unwilling to serve as the primary caregivers of the child; and they have a legal relationship to the child, such as legal custody, adoption, or guardianship, or are raising the child informally."
  • Stated condition, not checked automatically: "An older relative caregiver is a caregiver who is aged 55 or older, and lives with, is the informal provider of in-home and community care to, and is the primary caregiver for, a child and/or individual with a disability."
• All of these:
  • Stated condition, not checked automatically: "Older relatives (including the parents), aged 55 and older, living with, and providing care to, an adult(s) aged 18 to 59 with disabilities."
  • Stated condition, not checked automatically: "The older relative caregiver is the parent, grandparent, or other relative by blood, marriage, or adoption, of the individual with the disability."
  • Stated condition, not checked automatically: "An older relative caregiver is a caregiver who is aged 55 or older, and lives with, is the informal provider of in-home and community care to, and is the primary caregiver for, a child and/or individual with a disability."

Access route 1.1

• Where: New York State Area Agencies on Aging
• How: Contact your local Area Agency on Aging; NYSOFA identifies AAAs as the gateway to home and community-based services, including caregiver support services.
• Url: https://aging.ny.gov/local-offices

Access route 1.2

• Where: Cortland County Area Agency on Aging’s Caregiver Resource Center
• How: Contact the Cortland County Office for Aging’s Caregiver Resource Center to learn how the NFCSP can assist you.
• Url: https://www.cortlandcountyny.gov/609/Caregiver-Support
• Phone: 1(607)753-5060

Offering 2: respite care

In-home and/or out-of-home respite care provides caregivers with temporary relief from caregiving duties.

• Availability (owner codes): {"intake": "unknown", "type": "unknown"}

Conditions:

• Any one of these:
• All of these:
  • Stated condition, not checked automatically: "Adult family members or other informal caregivers aged 18 and older providing care to an individual(s) aged 60 and older."
  • Stated condition, not checked automatically: "A family caregiver is an adult family member, or another individual, who is an informal provider of in-home and community care to an older individual;"
  • Not:
  • Stated condition, not checked automatically: "For the purpose of these standards, family caregiver does not include individuals whose primary relationship with the older adult is based on a financial or professional agreement."
  • Stated condition, not checked automatically: "Caregivers must be assisting the care receiver with two or more ADLs/IADLs to be eligible for respite care under the NFCSP."
  • Stated condition, not checked automatically: "To provide respite care and supplemental services to family caregivers of adults aged 60 and older or individuals of any age with Alzheimer’s disease or related disorder, the individual for whom they are caring must be determined to be functionally impaired because the individual is unable to perform at least two ADLs without substantial assistance, including verbal reminding, physical cueing, or supervision; or due to a cognitive or other mental impairment, requires substantial supervision because the individual poses a serious health or safety hazard to themselves or others."
  • Stated condition, not checked automatically: "A caregiver assessment, as prescribed by NYSOFA, and a caregiver support plan must be completed prior to initiating respite care services."
• All of these:
  • Stated condition, not checked automatically: "Adult family members or other informal caregivers aged 18 and older, providing care to an individual(s) of any age with Alzheimer’s disease or related disorder."
  • Stated condition, not checked automatically: "Related disorders include dementia, traumatic brain injury, mild cognitive impairment, and chronic traumatic encephalopathy."
  • Stated condition, not checked automatically: "A family caregiver is an adult family member, or another individual, who is an informal provider of in-home and community care to an individual of any age with Alzheimer’s disease or related disorder;"
  • Stated condition, not checked automatically: "Caregivers must be assisting the care receiver with two or more ADLs/IADLs to be eligible for respite care under the NFCSP."
  • Stated condition, not checked automatically: "To provide respite care and supplemental services to family caregivers of adults aged 60 and older or individuals of any age with Alzheimer’s disease or related disorder, the individual for whom they are caring must be determined to be functionally impaired because the individual is unable to perform at least two ADLs without substantial assistance, including verbal reminding, physical cueing, or supervision; or due to a cognitive or other mental impairment, requires substantial supervision because the individual poses a serious health or safety hazard to themselves or others."
  • Stated condition, not checked automatically: "A caregiver assessment, as prescribed by NYSOFA, and a caregiver support plan must be completed prior to initiating respite care services."
• All of these:
  • Stated condition, not checked automatically: "Older relatives (not the parents) aged 55 and older, living with, and providing care to a child(ren) under the age of 18."
  • Stated condition, not checked automatically: "The older relative caregiver is the grandparent, step grandparent, or other relative (other than the parent) by blood, marriage, or adoption, of the child. They are the primary caregiver of the child because the biological or adoptive parents are unable or unwilling to serve as the primary caregivers of the child; and they have a legal relationship to the child, such as legal custody, adoption, or guardianship, or are raising the child informally."
  • Stated condition, not checked automatically: "An older relative caregiver is a caregiver who is aged 55 or older, and lives with, is the informal provider of in-home and community care to, and is the primary caregiver for, a child and/or individual with a disability."
  • Stated condition, not checked automatically: "Caregivers must be assisting the care receiver with two or more ADLs/IADLs to be eligible for respite care under the NFCSP."
  • Stated condition, not checked automatically: "A caregiver assessment, as prescribed by NYSOFA, and a caregiver support plan must be completed prior to initiating respite care services."
• All of these:
  • Stated condition, not checked automatically: "Older relatives (including the parents), aged 55 and older, living with, and providing care to, an adult(s) aged 18 to 59 with disabilities."
  • Stated condition, not checked automatically: "The older relative caregiver is the parent, grandparent, or other relative by blood, marriage, or adoption, of the individual with the disability."
  • Stated condition, not checked automatically: "An older relative caregiver is a caregiver who is aged 55 or older, and lives with, is the informal provider of in-home and community care to, and is the primary caregiver for, a child and/or individual with a disability."
  • Stated condition, not checked automatically: "Caregivers must be assisting the care receiver with two or more ADLs/IADLs to be eligible for respite care under the NFCSP."
  • Stated condition, not checked automatically: "A caregiver assessment, as prescribed by NYSOFA, and a caregiver support plan must be completed prior to initiating respite care services."

Access route 2.1

• Where: New York State Area Agencies on Aging
• How: Contact your local Area Agency on Aging; NYSOFA identifies AAAs as the gateway to home and community-based services, including caregiver support services.
• Url: https://aging.ny.gov/local-offices

Access route 2.2

• Where: Cortland County Area Agency on Aging’s Caregiver Resource Center
• How: Contact the Cortland County Office for Aging’s Caregiver Resource Center to learn how the NFCSP can assist you.
• Url: https://www.cortlandcountyny.gov/609/Caregiver-Support
• Phone: 1(607)753-5060

Offering 3: supplemental services

Supplemental services are provided on a limited basis to complement the care provided by caregivers.

• Availability (owner codes): {"intake": "unknown", "type": "unknown"}

Conditions:

• Any one of these:
• All of these:
  • Stated condition, not checked automatically: "Adult family members or other informal caregivers aged 18 and older providing care to an individual(s) aged 60 and older."
  • Stated condition, not checked automatically: "A family caregiver is an adult family member, or another individual, who is an informal provider of in-home and community care to an older individual;"
  • Not:
  • Stated condition, not checked automatically: "For the purpose of these standards, family caregiver does not include individuals whose primary relationship with the older adult is based on a financial or professional agreement."
  • Stated condition, not checked automatically: "To provide respite care and supplemental services to family caregivers of adults aged 60 and older or individuals of any age with Alzheimer’s disease or related disorder, the individual for whom they are caring must be determined to be functionally impaired because the individual is unable to perform at least two ADLs without substantial assistance, including verbal reminding, physical cueing, or supervision; or due to a cognitive or other mental impairment, requires substantial supervision because the individual poses a serious health or safety hazard to themselves or others."
• All of these:
  • Stated condition, not checked automatically: "Adult family members or other informal caregivers aged 18 and older, providing care to an individual(s) of any age with Alzheimer’s disease or related disorder."
  • Stated condition, not checked automatically: "Related disorders include dementia, traumatic brain injury, mild cognitive impairment, and chronic traumatic encephalopathy."
  • Stated condition, not checked automatically: "A family caregiver is an adult family member, or another individual, who is an informal provider of in-home and community care to an individual of any age with Alzheimer’s disease or related disorder;"
  • Stated condition, not checked automatically: "To provide respite care and supplemental services to family caregivers of adults aged 60 and older or individuals of any age with Alzheimer’s disease or related disorder, the individual for whom they are caring must be determined to be functionally impaired because the individual is unable to perform at least two ADLs without substantial assistance, including verbal reminding, physical cueing, or supervision; or due to a cognitive or other mental impairment, requires substantial supervision because the individual poses a serious health or safety hazard to themselves or others."
• All of these:
  • Stated condition, not checked automatically: "Older relatives (not the parents) aged 55 and older, living with, and providing care to a child(ren) under the age of 18."
  • Stated condition, not checked automatically: "The older relative caregiver is the grandparent, step grandparent, or other relative (other than the parent) by blood, marriage, or adoption, of the child. They are the primary caregiver of the child because the biological or adoptive parents are unable or unwilling to serve as the primary caregivers of the child; and they have a legal relationship to the child, such as legal custody, adoption, or guardianship, or are raising the child informally."
  • Stated condition, not checked automatically: "An older relative caregiver is a caregiver who is aged 55 or older, and lives with, is the informal provider of in-home and community care to, and is the primary caregiver for, a child and/or individual with a disability."
• All of these:
  • Stated condition, not checked automatically: "Older relatives (including the parents), aged 55 and older, living with, and providing care to, an adult(s) aged 18 to 59 with disabilities."
  • Stated condition, not checked automatically: "The older relative caregiver is the parent, grandparent, or other relative by blood, marriage, or adoption, of the individual with the disability."
  • Stated condition, not checked automatically: "An older relative caregiver is a caregiver who is aged 55 or older, and lives with, is the informal provider of in-home and community care to, and is the primary caregiver for, a child and/or individual with a disability."

Access route 3.1

• Where: New York State Area Agencies on Aging
• How: Contact your local Area Agency on Aging; NYSOFA identifies AAAs as the gateway to home and community-based services, including caregiver support services.
• Url: https://aging.ny.gov/local-offices

Access route 3.2

• Where: Cortland County Area Agency on Aging’s Caregiver Resource Center
• How: Contact the Cortland County Office for Aging’s Caregiver Resource Center to learn how the NFCSP can assist you.
• Url: https://www.cortlandcountyny.gov/609/Caregiver-Support
• Phone: 1(607)753-5060

Owner confirmations

• /offerings/0/access/0: sha256:41fa759b0b57719e70c56a994c76a50f3060a3f86f885ba2930a6c2f562a522f
• /offerings/1/access/0: sha256:41fa759b0b57719e70c56a994c76a50f3060a3f86f885ba2930a6c2f562a522f
• /offerings/2/access/0: sha256:41fa759b0b57719e70c56a994c76a50f3060a3f86f885ba2930a6c2f562a522f
• /offerings/2/rules: sha256:f524eda52889550886bc6e094c93cb6ef02c2544ea2dcd68f18c8ae43641086d

Evidence

• /name: "# National Family Caregiver Support Program" (source, capture 03e30d27e82235b221d8f30e4512c2c7f4424cfbec4a7ca62c8f0b0ddac5b1ee)
• /authority: "NYSOFA administers the NFCSP through its 59 AAAs. All AAAs receiving NFCSP funding are required to establish and operate a caregiver support program that:" (source, capture 03e30d27e82235b221d8f30e4512c2c7f4424cfbec4a7ca62c8f0b0ddac5b1ee)
• /caregiving_effect: "A. NFCSP Service Delivery. 1. The AAA, or contractor designated by the AAA, must make the following services available to eligible caregivers in accordance with section 373(b) of the OAA: (a) Information to caregivers about available services. (b) Assistance to caregivers in gaining access to the services, including information and assistance and case management. (c) Individual caregiver counseling, organization of caregiver support groups, and/or caregiver training to assist the caregivers in the areas of health, nutrition, and financial literacy, and in making decisions and solving problems relating to their caregiving roles. (d) Respite care (in-home, out-of-home [day], and/or out-of-home [overnight], including caregiver-directed respite care) to enable caregivers to be temporarily relieved from their caregiving responsibilities. (i) If the caregiver is caring for more than one individual, the AAA may choose to offer additional respite care hours to the caregiver. (e) Supplemental services on a limited basis to complement the care provided by caregivers. 16 (i) Not more than 30% of the total federal and nonfederal expenditures for the NFCSP may be used to provide supplemental services. (ii) Service domains for supplemental services include: (1) Assistive technology, durable equipment, emergency response systems. (2) Consumable supplies. (3) Home modifications and repairs. (4) Legal and financial consultation. (5) Homemaker, chore, and personal care services. (6) Transportation. (7) Nutrition services. (8) Other. 2. The AAA, or contractor designated by the AAA, may exceed the cap on supplemental services (30% of total allocation) if there is an emergent need with approval by NYSOFA. 3. These services must be designed to work in conjunction with other state and community-based services to provide a coordinated set of supports to family and informal caregivers. B. Caregiver-Directed Respite Services. 1. The AAA, or contractor designated by the AAA, accepting NFCSP funds from NYSOFA may offer caregiver-directed respite services under Title III-E of the OAA to provide respite care to benefit the caregiver. 2. The AAA, or contractor designated by the AAA, must choose to implement a payment mechanism for caregiver-directed respite services that is approved by NYSOFA. Payment mechanisms include, but are not limited to: (a) Fiscal intermediaries. (i) The AAA, or contractor designated by the AAA, may contract with a fiscal intermediary (FI) to perform the administrative functions of their caregiver-directed respite model. Administrative functions include processing payments or vouchers to the respite provider or caregiver. (ii) The FI must ensure that respite workers comply with all New York 17 State Department of Health requirements. (iii) The FI is responsible for training the caregiver and the respite worker on the following: (1) The roles and responsibilities of the FI. (2) The respective roles and responsibilities of the caregiver and the respite worker as they relate to the roles and responsibilities of the FI. a. At the request of the caregiver, additional training may be provided. If training is available, the case manager or FI, as determined by the AAA, or contractor designated by the AAA, will inform the caregiver of additional training available, and the respite worker, and the entity(ies) responsible for providing it. (iv) The FI shall maintain a record for each caregiver receiving respite care served by the FI. That record shall be updated in a timely manner and contain at a minimum: (1) The caregiver’s contact information. (2) Current and past authorization for services during the FI’s tenure. (3) Name and other pertinent information of the care receiver. (4) Name(s) and contact information of the respite worker. (5) A log of contacts between the FI and the case manager and between the FI and the caregiver that includes date of contact, who the contact was with, summary of contact, and follow up. (6) Documentation of training provided by the FI to the caregiver. (7) Copies of any caregiver specific reports request by the AAA, case manager, or caregiver. (v) The FI shall maintain a current record for each respite worker that contains at minimum: (1) Enrollment forms for a respite worker. (2) Contact information. (3) Documentation of meeting eligibility requirements to be a respite worker. A caregiver-directed respite worker must meet all of the following requirements: 18 a. Be at least 18 years of age. b. Be a citizen of the United States or have the legal authority to work in the United States. c. Have not been convicted of Medicaid or other benefits fraud or any form of abuse, neglect, or exploitation. d. Cannot be the primary caregiver. (4) Copies of any agreements signed by the respite worker. (5) Required payroll and other benefits documents. (6) Copy of time sheets or electronic time keeping records. (7) Documentation of any training requests to the FI by the caregiver for the respite worker. (8) A log of contacts between the FI and the respite worker that includes date, who the contact was with, summary of contact, and follow up. (b) Respite vouchers. (i) Respite vouchers may be used to award funds to caregivers. Typically, the caregiver is notified of their award for a certain dollar amount that they may use to redeem respite services during a specified time period. (ii) For background check requirements, please refer to Section III of this PI. (iii) Policies and procedures must be established and shall comply with the standards defined in this PI. (iv) The Attachment C process must be used when establishing, implementing, expanding, or modifying caregiver-directed respite services. C. Emergency Respite. 1. The AAA, or contractor designated by the AAA, has the option of offering an emergency respite component. All eligibility requirements applicable to traditional services under the NFCSP apply to this service delivery model. 2. Policies and procedures must be established and shall comply with the standards and requirements defined this PI. 19 3. A caregiver assessment must be completed within five business days after the start of emergency respite service delivery. D. Service Authorizations. 1. If the AAA, or contractor designated by the AAA, is authorizing caregiver services, they must send the caregiver’s information to the NFCSP provider. The caregiver is responsible for providing the necessary information to the NFCSP provider. 2. A sample service authorization form has been developed for use by the AAA and contractors designated by the AAA (Attachment 4). E. Coordination With LTSS. 1. If there is a documented need for additional respite care services beyond what is provided to the caregiver by home and community-based waiver programs, Medicaid, or the Expanded In-Home Services for the Elderly Program (EISEP), the program staff must obtain approval from their supervisor to authorize the respite and document the justification. 2. If the needs of the caregiver exceed what is offered under the NFCSP, the AAA, or contractor designated by the AAA, may refer the care receiver to LTSS such as EISEP. 3. Caregivers may access caregiver supports funded elsewhere (e.g., Alzheimer’s Disease Caregiver Support Initiative (ADCSI)) at different times of the calendar year if an assessment determines that the caregiver has exhausted supports where they were initially enrolled. F. Use of Volunteers. 1. The AAA, or contractor designated by the AAA, shall make use of trained volunteers to expand the provision of available caregiver services. (a) If possible, the AAA, or contractor designated by the AAA, shall coordinate with organizations that have experience in volunteer management, including volunteer placement and training, and the use of stipends. This includes organizations carrying out federal service programs administered by the Corporation for National and Community Service and the New York State Caregiving and Respite Coalition. G. Accessibility, Targeting, and Equal Access. 1. The AAA, or contractor designated by the AAA, must ensure that NFCSP services are complaint with all local, state, and federal law, regulations, and 20 issuances for accessibility, targeting, and equal access. 2. The AAA, or contractor designated by the AAA, must ensure barrier free access to services, including: (a) Physical accessibility for individuals with disabilities. (b) Language accessibility for individuals with limited English proficiency. (i) At minimum, a telephonic interpretation service contract with a language interpretation services provider must be established and maintained. (ii) The provision of other accessibility aids if needed, including a qualified sign language interpreter, auxiliary aids and services such as 711/NY Relay, TTY/TTD, large print materials, audio recordings, and Braille. 3. The AAA, or contractor designated by the AAA, must provide maximum service accessibility to caregivers in greatest economic need (meaning need resulting from an income level at or below the federal poverty level). 4. The AAA, or contractor designated by the AAA, must provide maximum service accessibility to caregivers in greatest social need (meaning need caused by noneconomic factors) including: (a) Physical and mental disabilities. (b) Language barriers. (c) Cultural, social, or geographical isolation, including isolation due to racial or ethnic status; Native American identity; religious affiliation; sexual orientation, gender identity, or sex characteristics; HIV status; chronic conditions; housing instability, food insecurity, lack of access to reliable and clean water supply, lack of transportation, or utility assistance needs; interpersonal safety concerns; rural location; or any other status that restricts the ability of an individual to perform normal or routine daily tasks or threatens the capacity of the individual to live independently. (d) Other needs as further defined by the state and area plans based on local and individual factors. 5. To the maximum extent possible, the AAA, or contractor designated by the AAA, must make space available for supportive services, educational services, and recreational activities that protects the privacy of caregivers. 6. The AAA, or contractor designated by the AAA, must ensure caregivers are registered in accordance with NYSOFA’s reporting requirements. 21 7. The AAA, or the contractor designated by the AAA, must monitor caregivers to determine the need for additional caregiver support services and facilitates referrals when necessary. 8. The AAA, or the contractor designated by the AAA, must have processes for NFCSP providers (direct or contracted) to alert the AAA of conditions or circumstances that may endanger the caregiver, care receiver, other participants, workers, or volunteers. " (source, capture 3986fc61a025ecbdbf17c49cd105797071f7037063778ade7a2ce6d465e0c8e3)
• /offerings/0/summary: "A. NFCSP Service Delivery. 1. The AAA, or contractor designated by the AAA, must make the following services available to eligible caregivers in accordance with section 373(b) of the OAA: (a) Information to caregivers about available services. (b) Assistance to caregivers in gaining access to the services, including information and assistance and case management. (c) Individual caregiver counseling, organization of caregiver support groups, and/or caregiver training to assist the caregivers in the areas of health, nutrition, and financial literacy, and in making decisions and solving problems relating to their caregiving roles. (d) Respite care (in-home, out-of-home [day], and/or out-of-home [overnight], including caregiver-directed respite care) to enable caregivers to be temporarily relieved from their caregiving responsibilities. (i) If the caregiver is caring for more than one individual, the AAA may choose to offer additional respite care hours to the caregiver. (e) Supplemental services on a limited basis to complement the care provided by caregivers. 16 (i) Not more than 30% of the total federal and nonfederal expenditures for the NFCSP may be used to provide supplemental services. (ii) Service domains for supplemental services include: (1) Assistive technology, durable equipment, emergency response systems. (2) Consumable supplies. (3) Home modifications and repairs. (4) Legal and financial consultation. (5) Homemaker, chore, and personal care services. (6) Transportation. (7) Nutrition services. (8) Other. 2. The AAA, or contractor designated by the AAA, may exceed the cap on supplemental services (30% of total allocation) if there is an emergent need with approval by NYSOFA. 3. These services must be designed to work in conjunction with other state and community-based services to provide a coordinated set of supports to family and informal caregivers. B. Caregiver-Directed Respite Services. 1. The AAA, or contractor designated by the AAA, accepting NFCSP funds from NYSOFA may offer caregiver-directed respite services under Title III-E of the OAA to provide respite care to benefit the caregiver. 2. The AAA, or contractor designated by the AAA, must choose to implement a payment mechanism for caregiver-directed respite services that is approved by NYSOFA. Payment mechanisms include, but are not limited to: (a) Fiscal intermediaries. (i) The AAA, or contractor designated by the AAA, may contract with a fiscal intermediary (FI) to perform the administrative functions of their caregiver-directed respite model. Administrative functions include processing payments or vouchers to the respite provider or caregiver. (ii) The FI must ensure that respite workers comply with all New York 17 State Department of Health requirements. (iii) The FI is responsible for training the caregiver and the respite worker on the following: (1) The roles and responsibilities of the FI. (2) The respective roles and responsibilities of the caregiver and the respite worker as they relate to the roles and responsibilities of the FI. a. At the request of the caregiver, additional training may be provided. If training is available, the case manager or FI, as determined by the AAA, or contractor designated by the AAA, will inform the caregiver of additional training available, and the respite worker, and the entity(ies) responsible for providing it. (iv) The FI shall maintain a record for each caregiver receiving respite care served by the FI. That record shall be updated in a timely manner and contain at a minimum: (1) The caregiver’s contact information. (2) Current and past authorization for services during the FI’s tenure. (3) Name and other pertinent information of the care receiver. (4) Name(s) and contact information of the respite worker. (5) A log of contacts between the FI and the case manager and between the FI and the caregiver that includes date of contact, who the contact was with, summary of contact, and follow up. (6) Documentation of training provided by the FI to the caregiver. (7) Copies of any caregiver specific reports request by the AAA, case manager, or caregiver. (v) The FI shall maintain a current record for each respite worker that contains at minimum: (1) Enrollment forms for a respite worker. (2) Contact information. (3) Documentation of meeting eligibility requirements to be a respite worker. A caregiver-directed respite worker must meet all of the following requirements: 18 a. Be at least 18 years of age. b. Be a citizen of the United States or have the legal authority to work in the United States. c. Have not been convicted of Medicaid or other benefits fraud or any form of abuse, neglect, or exploitation. d. Cannot be the primary caregiver. (4) Copies of any agreements signed by the respite worker. (5) Required payroll and other benefits documents. (6) Copy of time sheets or electronic time keeping records. (7) Documentation of any training requests to the FI by the caregiver for the respite worker. (8) A log of contacts between the FI and the respite worker that includes date, who the contact was with, summary of contact, and follow up. (b) Respite vouchers. (i) Respite vouchers may be used to award funds to caregivers. Typically, the caregiver is notified of their award for a certain dollar amount that they may use to redeem respite services during a specified time period. (ii) For background check requirements, please refer to Section III of this PI. (iii) Policies and procedures must be established and shall comply with the standards defined in this PI. (iv) The Attachment C process must be used when establishing, implementing, expanding, or modifying caregiver-directed respite services. C. Emergency Respite. 1. The AAA, or contractor designated by the AAA, has the option of offering an emergency respite component. All eligibility requirements applicable to traditional services under the NFCSP apply to this service delivery model. 2. Policies and procedures must be established and shall comply with the standards and requirements defined this PI. 19 3. A caregiver assessment must be completed within five business days after the start of emergency respite service delivery. D. Service Authorizations. 1. If the AAA, or contractor designated by the AAA, is authorizing caregiver services, they must send the caregiver’s information to the NFCSP provider. The caregiver is responsible for providing the necessary information to the NFCSP provider. 2. A sample service authorization form has been developed for use by the AAA and contractors designated by the AAA (Attachment 4). E. Coordination With LTSS. 1. If there is a documented need for additional respite care services beyond what is provided to the caregiver by home and community-based waiver programs, Medicaid, or the Expanded In-Home Services for the Elderly Program (EISEP), the program staff must obtain approval from their supervisor to authorize the respite and document the justification. 2. If the needs of the caregiver exceed what is offered under the NFCSP, the AAA, or contractor designated by the AAA, may refer the care receiver to LTSS such as EISEP. 3. Caregivers may access caregiver supports funded elsewhere (e.g., Alzheimer’s Disease Caregiver Support Initiative (ADCSI)) at different times of the calendar year if an assessment determines that the caregiver has exhausted supports where they were initially enrolled. F. Use of Volunteers. 1. The AAA, or contractor designated by the AAA, shall make use of trained volunteers to expand the provision of available caregiver services. (a) If possible, the AAA, or contractor designated by the AAA, shall coordinate with organizations that have experience in volunteer management, including volunteer placement and training, and the use of stipends. This includes organizations carrying out federal service programs administered by the Corporation for National and Community Service and the New York State Caregiving and Respite Coalition. G. Accessibility, Targeting, and Equal Access. 1. The AAA, or contractor designated by the AAA, must ensure that NFCSP services are complaint with all local, state, and federal law, regulations, and 20 issuances for accessibility, targeting, and equal access. 2. The AAA, or contractor designated by the AAA, must ensure barrier free access to services, including: (a) Physical accessibility for individuals with disabilities. (b) Language accessibility for individuals with limited English proficiency. (i) At minimum, a telephonic interpretation service contract with a language interpretation services provider must be established and maintained. (ii) The provision of other accessibility aids if needed, including a qualified sign language interpreter, auxiliary aids and services such as 711/NY Relay, TTY/TTD, large print materials, audio recordings, and Braille. 3. The AAA, or contractor designated by the AAA, must provide maximum service accessibility to caregivers in greatest economic need (meaning need resulting from an income level at or below the federal poverty level). 4. The AAA, or contractor designated by the AAA, must provide maximum service accessibility to caregivers in greatest social need (meaning need caused by noneconomic factors) including: (a) Physical and mental disabilities. (b) Language barriers. (c) Cultural, social, or geographical isolation, including isolation due to racial or ethnic status; Native American identity; religious affiliation; sexual orientation, gender identity, or sex characteristics; HIV status; chronic conditions; housing instability, food insecurity, lack of access to reliable and clean water supply, lack of transportation, or utility assistance needs; interpersonal safety concerns; rural location; or any other status that restricts the ability of an individual to perform normal or routine daily tasks or threatens the capacity of the individual to live independently. (d) Other needs as further defined by the state and area plans based on local and individual factors. 5. To the maximum extent possible, the AAA, or contractor designated by the AAA, must make space available for supportive services, educational services, and recreational activities that protects the privacy of caregivers. 6. The AAA, or contractor designated by the AAA, must ensure caregivers are registered in accordance with NYSOFA’s reporting requirements. 21 7. The AAA, or the contractor designated by the AAA, must monitor caregivers to determine the need for additional caregiver support services and facilitates referrals when necessary. 8. The AAA, or the contractor designated by the AAA, must have processes for NFCSP providers (direct or contracted) to alert the AAA of conditions or circumstances that may endanger the caregiver, care receiver, other participants, workers, or volunteers. " (source, capture 3986fc61a025ecbdbf17c49cd105797071f7037063778ade7a2ce6d465e0c8e3)
• /offerings/0/rules: "A. NFCSP Services Eligibility. 1. According to the OAA, the following populations of caregivers are eligible for services under the NFCSP: (a) Adult family members or other informal caregivers aged 18 and older providing care to an individual(s) aged 60 and older. (b) Adult family members or other informal caregivers aged 18 and older, providing care to an individual(s) of any age with Alzheimer’s disease or related disorder. Related disorders include dementia, traumatic brain injury, mild cognitive impairment, and chronic traumatic encephalopathy. (c) Older relatives (not the parents) aged 55 and older, living with, and providing care to a child(ren) under the age of 18. (d) Older relatives (including the parents), aged 55 and older, living with, and 13 providing care to, an adult(s) aged 18 to 59 with disabilities. 2. Caregivers must be assisting the care receiver with two or more ADLs/IADLs to be eligible for respite care under the NFCSP. 3. To provide respite care and supplemental services to family caregivers of adults aged 60 and older or individuals of any age with Alzheimer’s disease or related disorder, the individual for whom they are caring must be determined to be functionally impaired because the individual is unable to perform at least two ADLs without substantial assistance, including verbal reminding, physical cueing, or supervision; or due to a cognitive or other mental impairment, requires substantial supervision because the individual poses a serious health or safety hazard to themselves or others. Caregivers who meet the definition of older relative caregiver are eligible for all five service types. B. Caregiver Assessment. 1. The AAA, or contractor designated by the AAA, must attempt to assess each caregiver who is referred to the NFCSP (using the prescribed caregiver assessment tool) to identify specific needs, barriers to carrying out caregiving responsibilities, and existing supports in place, as reported by the caregiver. This assessment will help the AAA, or contractor designated by the AAA, provide appropriate recommendations for caregiver support services. (a) Caregiver assessments must be conducted by an individual who is trained in case management, as required by NYSOFA. This individual must also meet the criteria outlined in Section III of this PI. (b) A caregiver assessment, as prescribed by NYSOFA, and a caregiver support plan must be completed prior to initiating respite care services. 2. The purpose of the assessment is to document the needs of the caregiver in a holistic manner that results in a support plan for the caregiver. 3. As a result of the types of respite care services received, the care receiver may be required to complete certain assessments and/or paperwork. 4. A caregiver support plan is a person-centered approach to developing a plan of care for supporting the caregiver in consultation with the care receiver. 5. The caregiver support plan must include one or more of the following goals: (a) Reduce caregiver stress. (b) Improve my mental health. (c) Improve my physical health. 14 (d) Feel better supported in my caregiving role. (e) Make more time for myself. (f) Practice self-care. (g) Seek out support. (h) Decrease social isolation. (i) Improve overall financial well-being. (j) Improve understanding of the disease process. (k) Maintain care receiver safely in the home environment. (l) Other. 6. The caregiver support plan shall include a desired outcome(s) and a plan to achieve the goal(s) and outcome(s). Desired outcomes for caregivers may include: (a) Decreased levels of caregiver burden. (b) Improved caregiver mental and physical health. (c) Improved confidence in caregiving abilities. (d) Increased knowledge of community resources. 7. There are additional supplemental tools that may be used with caregivers including the Loneliness Scale, Patient Health Questionnaire (PHQ-9), Nutrition Screen, Generalized Anxiety Disorder Screening Tool (GAD-7), and the CAGE substance abuse screening tool. 8. For open cases, reassessments shall be completed at six and 12 months, or when there is a significant change in the caregiver’s situation. Caregiver program staff shall conduct a brief check-in with the caregiver at three and nine months until the case is closed. (a) A case note shall be completed when staff conduct the brief check-in at three and nine months. (b) The objective of the reassessment is to review all criteria related to assessment findings so adjustments may be made to the caregiver support plan based on the caregiver’s most recent status and situation. (c) The AAA, or contractor designated by the AAA, shall set the policy on how many attempts staff should make to contact the caregiver before closing 15 the case. (d) If a caregiver is on a waitlist for services, the staff shall make regular contact with the caregiver to determine a change in needs. 9. If the caregiver refuses to be assessed, information and assistance, caregiver counseling, caregiver support groups, caregiver training, and supplemental services may still be provided. However, the minimum required data for registered services (caregiver counseling, caregiver training, and supplemental services) must still be collected. (a) For Supplemental Services_Nutrition services (such as home delivered meals or congregate meals) a short Nutrition Screen (Attachment 3) must be completed to account for any food allergies and/or dietary restrictions the caregiver and care receiver may have. 10. If the caregiver assessment identifies additional needs for the care receiver, a referral for an assessment of the care receiver for long-term services and supports (LTSS) may be made with the care receiver’s consent. " (source, capture 3986fc61a025ecbdbf17c49cd105797071f7037063778ade7a2ce6d465e0c8e3)
• /offerings/0/rules: "A. Activities of Daily Living (ADLs). 1. Activities of daily living are basic personal everyday activities including, but not limited to, tasks such as eating, toileting, grooming, dressing, bathing, and transferring. B. Alzheimer’s Disease. 1. Alzheimer’s disease is a type of dementia that affects memory, thinking, and behavior. Symptoms eventually grow severe enough to interfere with daily tasks. C. Caregiver Assessment. 1. Caregiver assessment is a defined process of gathering information to identify the specific needs, barriers to carrying out caregiving responsibilities, and existing supports of a family caregiver or older relative caregiver, as identified by the caregiver involved, to appropriately target recommendations for support services as described in section 373(b) of the OAA. The assessment shall be administered through direct contact with the caregiver, which may include contact through a home visit, the internet, telephone or teleconference, or in-person interaction. D. Caregiver-Directed Care. 1. Caregiver-directed care is an approach to providing services under the OAA 3including programs, benefits, supports, and technology, intended to assist the caregiver and the care receiver, in which: (a) Services (including the amount, duration, scope, provider, and location of such services) are planned, budgeted, and purchased under the direction and control of the caregiver. (b) The caregiver is provided with information and assistance as necessary and appropriate to enable them to make informed decisions about available services. (c) The needs, capabilities, and preferences of the caregiver with respect to such services, and their ability to direct and control the receipt of such services, are assessed by the AAA, or contractor designated by the AAA. (d) Based on the assessment, the AAA, or contractor designated by the AAA, will complete the following with the caregiver and care receiver: (i) Develop a caregiver support plan for the caregiver that specifies which services they are responsible for directing. (ii) Define the role of family members (and others whose participation is sought by the caregiver) in providing services under the caregiver support plan. (iii) Establish and implement a budget for these services. (e) The AAA, or contractor designated by the AAA, provides oversight of the self-directed services that the caregiver is receiving, including steps to ensure the quality of services provided and the appropriate use of funds under the OAA. E. Child. 1. A child is an individual who is not more than 18 years of age. F. Dementia. 1. Dementia is a general term for loss of memory, language, problem-solving, and other thinking abilities that are severe enough to interfere with daily life. Alzheimer's disease is the most common cause of dementia. G. Emergency Respite. 1. Emergency respite is the placement of an in-home respite provider or the temporary placement of the care receiver outside of the home, to substitute for the primary caregiver in the event of an emergency to provide temporary 4relief from the stress and responsibilities associated with providing constant care. H. Family Caregiver. 1. A family caregiver is an adult family member, or another individual, who is an informal provider of in-home and community care to an older individual; an adult family member, or another individual, who is an informal provider of in-home and community care to an individual of any age with Alzheimer’s disease or related disorder; or an older relative caregiver who is aged 55 or older providing support to a child under the age of 18 (not the parent) or an adult aged 18-59 with a disability (may be the parent). For the purpose of these standards, family caregiver does not include individuals whose primary relationship with the older adult is based on a financial or professional agreement. I. Individual With a Disability. 1. An individual with a disability must be between ages 18-59. J. Older Adult. 1. An older adult is a person aged 60 or older. K. Older Relative Caregiver. 1. An older relative caregiver is a caregiver who is aged 55 or older, and lives with, is the informal provider of in-home and community care to, and is the primary caregiver for, a child and/or individual with a disability. (a) In the case of a caregiver of a child: (i) The older relative caregiver is the grandparent, step grandparent, or other relative (other than the parent) by blood, marriage, or adoption, of the child. They are the primary caregiver of the child because the biological or adoptive parents are unable or unwilling to serve as the primary caregivers of the child; and they have a legal relationship to the child, such as legal custody, adoption, or guardianship, or are raising the child informally. (b) In the case of a caregiver of an individual with a disability: (i) The older relative caregiver is the parent, grandparent, or other relative by blood, marriage, or adoption, of the individual with the disability. 5L. Provider. 1. A provider is an organization or person providing services to individuals under a formal contractual or grant arrangement with NYSOFA, the AAA, or contractor designated by the AAA. M. Respite Care Services. 1. Respite care services are services that offer temporary, substitute supports or living arrangements for care receivers to provide a brief period of relief or rest for caregivers. N. Respite Provider. 1. A respite provider is an organization or person providing respite services to caregivers under a formal contractual or grant arrangement with the AAA, or contractor designated by the AAA. O. Respite Voucher. 1. Respite voucher is a service delivery method that provides financial assistance to caregivers for the purchase of respite services (in-home, out-of-home [day], and out-of-home [overnight]). P. Volunteer. 1. A volunteer is a person who performs a service without financial compensation for an individual or community organization. " (source, capture 3986fc61a025ecbdbf17c49cd105797071f7037063778ade7a2ce6d465e0c8e3)
• /offerings/0/access/0: "Area Agencies on Aging (AAAs) are the gateway to home and community-based services that help older New Yorkers age in place." (source, capture 22f4e7a7f4b2202b02a0d7287f85f3e31a876981223d060e0e990cbc8cae81f8)
• /offerings/0/access/0: "AAAs provide important services such as home-delivered meals, congregate meals, nutrition counseling, health insurance counseling, caregiver support services, and much more." (source, capture 22f4e7a7f4b2202b02a0d7287f85f3e31a876981223d060e0e990cbc8cae81f8)
• /offerings/0/access/0: "Find an Office" (source, capture 22f4e7a7f4b2202b02a0d7287f85f3e31a876981223d060e0e990cbc8cae81f8)
• /offerings/0/access/1: "If you answered yes to any of the questions above, you are eligible for the National Family Caregiver Support Program (NFCSP). The goal of the NFCSP is to support family caregivers so they may continue to carry out their caregiving roles and responsibilities. The program can provide services such as caregiver counseling, information and assistance, caregiver training, respite care (a break from caregiving), and much more. If you would like to learn more about how this program can assist you, please contact the Cortland County Office for Aging’s Caregiver Resource Center at 1(607)753-5060." (source, capture a26bcb4020cbdd01e13d95f78a772437f8f2faad490c50e089c0d9ebc2c160bb)
• /offerings/1/summary: "A. NFCSP Service Delivery. 1. The AAA, or contractor designated by the AAA, must make the following services available to eligible caregivers in accordance with section 373(b) of the OAA: (a) Information to caregivers about available services. (b) Assistance to caregivers in gaining access to the services, including information and assistance and case management. (c) Individual caregiver counseling, organization of caregiver support groups, and/or caregiver training to assist the caregivers in the areas of health, nutrition, and financial literacy, and in making decisions and solving problems relating to their caregiving roles. (d) Respite care (in-home, out-of-home [day], and/or out-of-home [overnight], including caregiver-directed respite care) to enable caregivers to be temporarily relieved from their caregiving responsibilities. (i) If the caregiver is caring for more than one individual, the AAA may choose to offer additional respite care hours to the caregiver. (e) Supplemental services on a limited basis to complement the care provided by caregivers. 16 (i) Not more than 30% of the total federal and nonfederal expenditures for the NFCSP may be used to provide supplemental services. (ii) Service domains for supplemental services include: (1) Assistive technology, durable equipment, emergency response systems. (2) Consumable supplies. (3) Home modifications and repairs. (4) Legal and financial consultation. (5) Homemaker, chore, and personal care services. (6) Transportation. (7) Nutrition services. (8) Other. 2. The AAA, or contractor designated by the AAA, may exceed the cap on supplemental services (30% of total allocation) if there is an emergent need with approval by NYSOFA. 3. These services must be designed to work in conjunction with other state and community-based services to provide a coordinated set of supports to family and informal caregivers. B. Caregiver-Directed Respite Services. 1. The AAA, or contractor designated by the AAA, accepting NFCSP funds from NYSOFA may offer caregiver-directed respite services under Title III-E of the OAA to provide respite care to benefit the caregiver. 2. The AAA, or contractor designated by the AAA, must choose to implement a payment mechanism for caregiver-directed respite services that is approved by NYSOFA. Payment mechanisms include, but are not limited to: (a) Fiscal intermediaries. (i) The AAA, or contractor designated by the AAA, may contract with a fiscal intermediary (FI) to perform the administrative functions of their caregiver-directed respite model. Administrative functions include processing payments or vouchers to the respite provider or caregiver. (ii) The FI must ensure that respite workers comply with all New York 17 State Department of Health requirements. (iii) The FI is responsible for training the caregiver and the respite worker on the following: (1) The roles and responsibilities of the FI. (2) The respective roles and responsibilities of the caregiver and the respite worker as they relate to the roles and responsibilities of the FI. a. At the request of the caregiver, additional training may be provided. If training is available, the case manager or FI, as determined by the AAA, or contractor designated by the AAA, will inform the caregiver of additional training available, and the respite worker, and the entity(ies) responsible for providing it. (iv) The FI shall maintain a record for each caregiver receiving respite care served by the FI. That record shall be updated in a timely manner and contain at a minimum: (1) The caregiver’s contact information. (2) Current and past authorization for services during the FI’s tenure. (3) Name and other pertinent information of the care receiver. (4) Name(s) and contact information of the respite worker. (5) A log of contacts between the FI and the case manager and between the FI and the caregiver that includes date of contact, who the contact was with, summary of contact, and follow up. (6) Documentation of training provided by the FI to the caregiver. (7) Copies of any caregiver specific reports request by the AAA, case manager, or caregiver. (v) The FI shall maintain a current record for each respite worker that contains at minimum: (1) Enrollment forms for a respite worker. (2) Contact information. (3) Documentation of meeting eligibility requirements to be a respite worker. A caregiver-directed respite worker must meet all of the following requirements: 18 a. Be at least 18 years of age. b. Be a citizen of the United States or have the legal authority to work in the United States. c. Have not been convicted of Medicaid or other benefits fraud or any form of abuse, neglect, or exploitation. d. Cannot be the primary caregiver. (4) Copies of any agreements signed by the respite worker. (5) Required payroll and other benefits documents. (6) Copy of time sheets or electronic time keeping records. (7) Documentation of any training requests to the FI by the caregiver for the respite worker. (8) A log of contacts between the FI and the respite worker that includes date, who the contact was with, summary of contact, and follow up. (b) Respite vouchers. (i) Respite vouchers may be used to award funds to caregivers. Typically, the caregiver is notified of their award for a certain dollar amount that they may use to redeem respite services during a specified time period. (ii) For background check requirements, please refer to Section III of this PI. (iii) Policies and procedures must be established and shall comply with the standards defined in this PI. (iv) The Attachment C process must be used when establishing, implementing, expanding, or modifying caregiver-directed respite services. C. Emergency Respite. 1. The AAA, or contractor designated by the AAA, has the option of offering an emergency respite component. All eligibility requirements applicable to traditional services under the NFCSP apply to this service delivery model. 2. Policies and procedures must be established and shall comply with the standards and requirements defined this PI. 19 3. A caregiver assessment must be completed within five business days after the start of emergency respite service delivery. D. Service Authorizations. 1. If the AAA, or contractor designated by the AAA, is authorizing caregiver services, they must send the caregiver’s information to the NFCSP provider. The caregiver is responsible for providing the necessary information to the NFCSP provider. 2. A sample service authorization form has been developed for use by the AAA and contractors designated by the AAA (Attachment 4). E. Coordination With LTSS. 1. If there is a documented need for additional respite care services beyond what is provided to the caregiver by home and community-based waiver programs, Medicaid, or the Expanded In-Home Services for the Elderly Program (EISEP), the program staff must obtain approval from their supervisor to authorize the respite and document the justification. 2. If the needs of the caregiver exceed what is offered under the NFCSP, the AAA, or contractor designated by the AAA, may refer the care receiver to LTSS such as EISEP. 3. Caregivers may access caregiver supports funded elsewhere (e.g., Alzheimer’s Disease Caregiver Support Initiative (ADCSI)) at different times of the calendar year if an assessment determines that the caregiver has exhausted supports where they were initially enrolled. F. Use of Volunteers. 1. The AAA, or contractor designated by the AAA, shall make use of trained volunteers to expand the provision of available caregiver services. (a) If possible, the AAA, or contractor designated by the AAA, shall coordinate with organizations that have experience in volunteer management, including volunteer placement and training, and the use of stipends. This includes organizations carrying out federal service programs administered by the Corporation for National and Community Service and the New York State Caregiving and Respite Coalition. G. Accessibility, Targeting, and Equal Access. 1. The AAA, or contractor designated by the AAA, must ensure that NFCSP services are complaint with all local, state, and federal law, regulations, and 20 issuances for accessibility, targeting, and equal access. 2. The AAA, or contractor designated by the AAA, must ensure barrier free access to services, including: (a) Physical accessibility for individuals with disabilities. (b) Language accessibility for individuals with limited English proficiency. (i) At minimum, a telephonic interpretation service contract with a language interpretation services provider must be established and maintained. (ii) The provision of other accessibility aids if needed, including a qualified sign language interpreter, auxiliary aids and services such as 711/NY Relay, TTY/TTD, large print materials, audio recordings, and Braille. 3. The AAA, or contractor designated by the AAA, must provide maximum service accessibility to caregivers in greatest economic need (meaning need resulting from an income level at or below the federal poverty level). 4. The AAA, or contractor designated by the AAA, must provide maximum service accessibility to caregivers in greatest social need (meaning need caused by noneconomic factors) including: (a) Physical and mental disabilities. (b) Language barriers. (c) Cultural, social, or geographical isolation, including isolation due to racial or ethnic status; Native American identity; religious affiliation; sexual orientation, gender identity, or sex characteristics; HIV status; chronic conditions; housing instability, food insecurity, lack of access to reliable and clean water supply, lack of transportation, or utility assistance needs; interpersonal safety concerns; rural location; or any other status that restricts the ability of an individual to perform normal or routine daily tasks or threatens the capacity of the individual to live independently. (d) Other needs as further defined by the state and area plans based on local and individual factors. 5. To the maximum extent possible, the AAA, or contractor designated by the AAA, must make space available for supportive services, educational services, and recreational activities that protects the privacy of caregivers. 6. The AAA, or contractor designated by the AAA, must ensure caregivers are registered in accordance with NYSOFA’s reporting requirements. 21 7. The AAA, or the contractor designated by the AAA, must monitor caregivers to determine the need for additional caregiver support services and facilitates referrals when necessary. 8. The AAA, or the contractor designated by the AAA, must have processes for NFCSP providers (direct or contracted) to alert the AAA of conditions or circumstances that may endanger the caregiver, care receiver, other participants, workers, or volunteers. " (source, capture 3986fc61a025ecbdbf17c49cd105797071f7037063778ade7a2ce6d465e0c8e3)
• /offerings/1/rules: "A. NFCSP Services Eligibility. 1. According to the OAA, the following populations of caregivers are eligible for services under the NFCSP: (a) Adult family members or other informal caregivers aged 18 and older providing care to an individual(s) aged 60 and older. (b) Adult family members or other informal caregivers aged 18 and older, providing care to an individual(s) of any age with Alzheimer’s disease or related disorder. Related disorders include dementia, traumatic brain injury, mild cognitive impairment, and chronic traumatic encephalopathy. (c) Older relatives (not the parents) aged 55 and older, living with, and providing care to a child(ren) under the age of 18. (d) Older relatives (including the parents), aged 55 and older, living with, and 13 providing care to, an adult(s) aged 18 to 59 with disabilities. 2. Caregivers must be assisting the care receiver with two or more ADLs/IADLs to be eligible for respite care under the NFCSP. 3. To provide respite care and supplemental services to family caregivers of adults aged 60 and older or individuals of any age with Alzheimer’s disease or related disorder, the individual for whom they are caring must be determined to be functionally impaired because the individual is unable to perform at least two ADLs without substantial assistance, including verbal reminding, physical cueing, or supervision; or due to a cognitive or other mental impairment, requires substantial supervision because the individual poses a serious health or safety hazard to themselves or others. Caregivers who meet the definition of older relative caregiver are eligible for all five service types. B. Caregiver Assessment. 1. The AAA, or contractor designated by the AAA, must attempt to assess each caregiver who is referred to the NFCSP (using the prescribed caregiver assessment tool) to identify specific needs, barriers to carrying out caregiving responsibilities, and existing supports in place, as reported by the caregiver. This assessment will help the AAA, or contractor designated by the AAA, provide appropriate recommendations for caregiver support services. (a) Caregiver assessments must be conducted by an individual who is trained in case management, as required by NYSOFA. This individual must also meet the criteria outlined in Section III of this PI. (b) A caregiver assessment, as prescribed by NYSOFA, and a caregiver support plan must be completed prior to initiating respite care services. 2. The purpose of the assessment is to document the needs of the caregiver in a holistic manner that results in a support plan for the caregiver. 3. As a result of the types of respite care services received, the care receiver may be required to complete certain assessments and/or paperwork. 4. A caregiver support plan is a person-centered approach to developing a plan of care for supporting the caregiver in consultation with the care receiver. 5. The caregiver support plan must include one or more of the following goals: (a) Reduce caregiver stress. (b) Improve my mental health. (c) Improve my physical health. 14 (d) Feel better supported in my caregiving role. (e) Make more time for myself. (f) Practice self-care. (g) Seek out support. (h) Decrease social isolation. (i) Improve overall financial well-being. (j) Improve understanding of the disease process. (k) Maintain care receiver safely in the home environment. (l) Other. 6. The caregiver support plan shall include a desired outcome(s) and a plan to achieve the goal(s) and outcome(s). Desired outcomes for caregivers may include: (a) Decreased levels of caregiver burden. (b) Improved caregiver mental and physical health. (c) Improved confidence in caregiving abilities. (d) Increased knowledge of community resources. 7. There are additional supplemental tools that may be used with caregivers including the Loneliness Scale, Patient Health Questionnaire (PHQ-9), Nutrition Screen, Generalized Anxiety Disorder Screening Tool (GAD-7), and the CAGE substance abuse screening tool. 8. For open cases, reassessments shall be completed at six and 12 months, or when there is a significant change in the caregiver’s situation. Caregiver program staff shall conduct a brief check-in with the caregiver at three and nine months until the case is closed. (a) A case note shall be completed when staff conduct the brief check-in at three and nine months. (b) The objective of the reassessment is to review all criteria related to assessment findings so adjustments may be made to the caregiver support plan based on the caregiver’s most recent status and situation. (c) The AAA, or contractor designated by the AAA, shall set the policy on how many attempts staff should make to contact the caregiver before closing 15 the case. (d) If a caregiver is on a waitlist for services, the staff shall make regular contact with the caregiver to determine a change in needs. 9. If the caregiver refuses to be assessed, information and assistance, caregiver counseling, caregiver support groups, caregiver training, and supplemental services may still be provided. However, the minimum required data for registered services (caregiver counseling, caregiver training, and supplemental services) must still be collected. (a) For Supplemental Services_Nutrition services (such as home delivered meals or congregate meals) a short Nutrition Screen (Attachment 3) must be completed to account for any food allergies and/or dietary restrictions the caregiver and care receiver may have. 10. If the caregiver assessment identifies additional needs for the care receiver, a referral for an assessment of the care receiver for long-term services and supports (LTSS) may be made with the care receiver’s consent. " (source, capture 3986fc61a025ecbdbf17c49cd105797071f7037063778ade7a2ce6d465e0c8e3)
• /offerings/1/rules: "A. Activities of Daily Living (ADLs). 1. Activities of daily living are basic personal everyday activities including, but not limited to, tasks such as eating, toileting, grooming, dressing, bathing, and transferring. B. Alzheimer’s Disease. 1. Alzheimer’s disease is a type of dementia that affects memory, thinking, and behavior. Symptoms eventually grow severe enough to interfere with daily tasks. C. Caregiver Assessment. 1. Caregiver assessment is a defined process of gathering information to identify the specific needs, barriers to carrying out caregiving responsibilities, and existing supports of a family caregiver or older relative caregiver, as identified by the caregiver involved, to appropriately target recommendations for support services as described in section 373(b) of the OAA. The assessment shall be administered through direct contact with the caregiver, which may include contact through a home visit, the internet, telephone or teleconference, or in-person interaction. D. Caregiver-Directed Care. 1. Caregiver-directed care is an approach to providing services under the OAA 3including programs, benefits, supports, and technology, intended to assist the caregiver and the care receiver, in which: (a) Services (including the amount, duration, scope, provider, and location of such services) are planned, budgeted, and purchased under the direction and control of the caregiver. (b) The caregiver is provided with information and assistance as necessary and appropriate to enable them to make informed decisions about available services. (c) The needs, capabilities, and preferences of the caregiver with respect to such services, and their ability to direct and control the receipt of such services, are assessed by the AAA, or contractor designated by the AAA. (d) Based on the assessment, the AAA, or contractor designated by the AAA, will complete the following with the caregiver and care receiver: (i) Develop a caregiver support plan for the caregiver that specifies which services they are responsible for directing. (ii) Define the role of family members (and others whose participation is sought by the caregiver) in providing services under the caregiver support plan. (iii) Establish and implement a budget for these services. (e) The AAA, or contractor designated by the AAA, provides oversight of the self-directed services that the caregiver is receiving, including steps to ensure the quality of services provided and the appropriate use of funds under the OAA. E. Child. 1. A child is an individual who is not more than 18 years of age. F. Dementia. 1. Dementia is a general term for loss of memory, language, problem-solving, and other thinking abilities that are severe enough to interfere with daily life. Alzheimer's disease is the most common cause of dementia. G. Emergency Respite. 1. Emergency respite is the placement of an in-home respite provider or the temporary placement of the care receiver outside of the home, to substitute for the primary caregiver in the event of an emergency to provide temporary 4relief from the stress and responsibilities associated with providing constant care. H. Family Caregiver. 1. A family caregiver is an adult family member, or another individual, who is an informal provider of in-home and community care to an older individual; an adult family member, or another individual, who is an informal provider of in-home and community care to an individual of any age with Alzheimer’s disease or related disorder; or an older relative caregiver who is aged 55 or older providing support to a child under the age of 18 (not the parent) or an adult aged 18-59 with a disability (may be the parent). For the purpose of these standards, family caregiver does not include individuals whose primary relationship with the older adult is based on a financial or professional agreement. I. Individual With a Disability. 1. An individual with a disability must be between ages 18-59. J. Older Adult. 1. An older adult is a person aged 60 or older. K. Older Relative Caregiver. 1. An older relative caregiver is a caregiver who is aged 55 or older, and lives with, is the informal provider of in-home and community care to, and is the primary caregiver for, a child and/or individual with a disability. (a) In the case of a caregiver of a child: (i) The older relative caregiver is the grandparent, step grandparent, or other relative (other than the parent) by blood, marriage, or adoption, of the child. They are the primary caregiver of the child because the biological or adoptive parents are unable or unwilling to serve as the primary caregivers of the child; and they have a legal relationship to the child, such as legal custody, adoption, or guardianship, or are raising the child informally. (b) In the case of a caregiver of an individual with a disability: (i) The older relative caregiver is the parent, grandparent, or other relative by blood, marriage, or adoption, of the individual with the disability. 5L. Provider. 1. A provider is an organization or person providing services to individuals under a formal contractual or grant arrangement with NYSOFA, the AAA, or contractor designated by the AAA. M. Respite Care Services. 1. Respite care services are services that offer temporary, substitute supports or living arrangements for care receivers to provide a brief period of relief or rest for caregivers. N. Respite Provider. 1. A respite provider is an organization or person providing respite services to caregivers under a formal contractual or grant arrangement with the AAA, or contractor designated by the AAA. O. Respite Voucher. 1. Respite voucher is a service delivery method that provides financial assistance to caregivers for the purchase of respite services (in-home, out-of-home [day], and out-of-home [overnight]). P. Volunteer. 1. A volunteer is a person who performs a service without financial compensation for an individual or community organization. " (source, capture 3986fc61a025ecbdbf17c49cd105797071f7037063778ade7a2ce6d465e0c8e3)
• /offerings/1/access/0: "Area Agencies on Aging (AAAs) are the gateway to home and community-based services that help older New Yorkers age in place." (source, capture 22f4e7a7f4b2202b02a0d7287f85f3e31a876981223d060e0e990cbc8cae81f8)
• /offerings/1/access/0: "AAAs provide important services such as home-delivered meals, congregate meals, nutrition counseling, health insurance counseling, caregiver support services, and much more." (source, capture 22f4e7a7f4b2202b02a0d7287f85f3e31a876981223d060e0e990cbc8cae81f8)
• /offerings/1/access/0: "Find an Office" (source, capture 22f4e7a7f4b2202b02a0d7287f85f3e31a876981223d060e0e990cbc8cae81f8)
• /offerings/1/access/1: "If you answered yes to any of the questions above, you are eligible for the National Family Caregiver Support Program (NFCSP). The goal of the NFCSP is to support family caregivers so they may continue to carry out their caregiving roles and responsibilities. The program can provide services such as caregiver counseling, information and assistance, caregiver training, respite care (a break from caregiving), and much more. If you would like to learn more about how this program can assist you, please contact the Cortland County Office for Aging’s Caregiver Resource Center at 1(607)753-5060." (source, capture a26bcb4020cbdd01e13d95f78a772437f8f2faad490c50e089c0d9ebc2c160bb)
• /offerings/2/summary: "A. NFCSP Service Delivery. 1. The AAA, or contractor designated by the AAA, must make the following services available to eligible caregivers in accordance with section 373(b) of the OAA: (a) Information to caregivers about available services. (b) Assistance to caregivers in gaining access to the services, including information and assistance and case management. (c) Individual caregiver counseling, organization of caregiver support groups, and/or caregiver training to assist the caregivers in the areas of health, nutrition, and financial literacy, and in making decisions and solving problems relating to their caregiving roles. (d) Respite care (in-home, out-of-home [day], and/or out-of-home [overnight], including caregiver-directed respite care) to enable caregivers to be temporarily relieved from their caregiving responsibilities. (i) If the caregiver is caring for more than one individual, the AAA may choose to offer additional respite care hours to the caregiver. (e) Supplemental services on a limited basis to complement the care provided by caregivers. 16 (i) Not more than 30% of the total federal and nonfederal expenditures for the NFCSP may be used to provide supplemental services. (ii) Service domains for supplemental services include: (1) Assistive technology, durable equipment, emergency response systems. (2) Consumable supplies. (3) Home modifications and repairs. (4) Legal and financial consultation. (5) Homemaker, chore, and personal care services. (6) Transportation. (7) Nutrition services. (8) Other. 2. The AAA, or contractor designated by the AAA, may exceed the cap on supplemental services (30% of total allocation) if there is an emergent need with approval by NYSOFA. 3. These services must be designed to work in conjunction with other state and community-based services to provide a coordinated set of supports to family and informal caregivers. B. Caregiver-Directed Respite Services. 1. The AAA, or contractor designated by the AAA, accepting NFCSP funds from NYSOFA may offer caregiver-directed respite services under Title III-E of the OAA to provide respite care to benefit the caregiver. 2. The AAA, or contractor designated by the AAA, must choose to implement a payment mechanism for caregiver-directed respite services that is approved by NYSOFA. Payment mechanisms include, but are not limited to: (a) Fiscal intermediaries. (i) The AAA, or contractor designated by the AAA, may contract with a fiscal intermediary (FI) to perform the administrative functions of their caregiver-directed respite model. Administrative functions include processing payments or vouchers to the respite provider or caregiver. (ii) The FI must ensure that respite workers comply with all New York 17 State Department of Health requirements. (iii) The FI is responsible for training the caregiver and the respite worker on the following: (1) The roles and responsibilities of the FI. (2) The respective roles and responsibilities of the caregiver and the respite worker as they relate to the roles and responsibilities of the FI. a. At the request of the caregiver, additional training may be provided. If training is available, the case manager or FI, as determined by the AAA, or contractor designated by the AAA, will inform the caregiver of additional training available, and the respite worker, and the entity(ies) responsible for providing it. (iv) The FI shall maintain a record for each caregiver receiving respite care served by the FI. That record shall be updated in a timely manner and contain at a minimum: (1) The caregiver’s contact information. (2) Current and past authorization for services during the FI’s tenure. (3) Name and other pertinent information of the care receiver. (4) Name(s) and contact information of the respite worker. (5) A log of contacts between the FI and the case manager and between the FI and the caregiver that includes date of contact, who the contact was with, summary of contact, and follow up. (6) Documentation of training provided by the FI to the caregiver. (7) Copies of any caregiver specific reports request by the AAA, case manager, or caregiver. (v) The FI shall maintain a current record for each respite worker that contains at minimum: (1) Enrollment forms for a respite worker. (2) Contact information. (3) Documentation of meeting eligibility requirements to be a respite worker. A caregiver-directed respite worker must meet all of the following requirements: 18 a. Be at least 18 years of age. b. Be a citizen of the United States or have the legal authority to work in the United States. c. Have not been convicted of Medicaid or other benefits fraud or any form of abuse, neglect, or exploitation. d. Cannot be the primary caregiver. (4) Copies of any agreements signed by the respite worker. (5) Required payroll and other benefits documents. (6) Copy of time sheets or electronic time keeping records. (7) Documentation of any training requests to the FI by the caregiver for the respite worker. (8) A log of contacts between the FI and the respite worker that includes date, who the contact was with, summary of contact, and follow up. (b) Respite vouchers. (i) Respite vouchers may be used to award funds to caregivers. Typically, the caregiver is notified of their award for a certain dollar amount that they may use to redeem respite services during a specified time period. (ii) For background check requirements, please refer to Section III of this PI. (iii) Policies and procedures must be established and shall comply with the standards defined in this PI. (iv) The Attachment C process must be used when establishing, implementing, expanding, or modifying caregiver-directed respite services. C. Emergency Respite. 1. The AAA, or contractor designated by the AAA, has the option of offering an emergency respite component. All eligibility requirements applicable to traditional services under the NFCSP apply to this service delivery model. 2. Policies and procedures must be established and shall comply with the standards and requirements defined this PI. 19 3. A caregiver assessment must be completed within five business days after the start of emergency respite service delivery. D. Service Authorizations. 1. If the AAA, or contractor designated by the AAA, is authorizing caregiver services, they must send the caregiver’s information to the NFCSP provider. The caregiver is responsible for providing the necessary information to the NFCSP provider. 2. A sample service authorization form has been developed for use by the AAA and contractors designated by the AAA (Attachment 4). E. Coordination With LTSS. 1. If there is a documented need for additional respite care services beyond what is provided to the caregiver by home and community-based waiver programs, Medicaid, or the Expanded In-Home Services for the Elderly Program (EISEP), the program staff must obtain approval from their supervisor to authorize the respite and document the justification. 2. If the needs of the caregiver exceed what is offered under the NFCSP, the AAA, or contractor designated by the AAA, may refer the care receiver to LTSS such as EISEP. 3. Caregivers may access caregiver supports funded elsewhere (e.g., Alzheimer’s Disease Caregiver Support Initiative (ADCSI)) at different times of the calendar year if an assessment determines that the caregiver has exhausted supports where they were initially enrolled. F. Use of Volunteers. 1. The AAA, or contractor designated by the AAA, shall make use of trained volunteers to expand the provision of available caregiver services. (a) If possible, the AAA, or contractor designated by the AAA, shall coordinate with organizations that have experience in volunteer management, including volunteer placement and training, and the use of stipends. This includes organizations carrying out federal service programs administered by the Corporation for National and Community Service and the New York State Caregiving and Respite Coalition. G. Accessibility, Targeting, and Equal Access. 1. The AAA, or contractor designated by the AAA, must ensure that NFCSP services are complaint with all local, state, and federal law, regulations, and 20 issuances for accessibility, targeting, and equal access. 2. The AAA, or contractor designated by the AAA, must ensure barrier free access to services, including: (a) Physical accessibility for individuals with disabilities. (b) Language accessibility for individuals with limited English proficiency. (i) At minimum, a telephonic interpretation service contract with a language interpretation services provider must be established and maintained. (ii) The provision of other accessibility aids if needed, including a qualified sign language interpreter, auxiliary aids and services such as 711/NY Relay, TTY/TTD, large print materials, audio recordings, and Braille. 3. The AAA, or contractor designated by the AAA, must provide maximum service accessibility to caregivers in greatest economic need (meaning need resulting from an income level at or below the federal poverty level). 4. The AAA, or contractor designated by the AAA, must provide maximum service accessibility to caregivers in greatest social need (meaning need caused by noneconomic factors) including: (a) Physical and mental disabilities. (b) Language barriers. (c) Cultural, social, or geographical isolation, including isolation due to racial or ethnic status; Native American identity; religious affiliation; sexual orientation, gender identity, or sex characteristics; HIV status; chronic conditions; housing instability, food insecurity, lack of access to reliable and clean water supply, lack of transportation, or utility assistance needs; interpersonal safety concerns; rural location; or any other status that restricts the ability of an individual to perform normal or routine daily tasks or threatens the capacity of the individual to live independently. (d) Other needs as further defined by the state and area plans based on local and individual factors. 5. To the maximum extent possible, the AAA, or contractor designated by the AAA, must make space available for supportive services, educational services, and recreational activities that protects the privacy of caregivers. 6. The AAA, or contractor designated by the AAA, must ensure caregivers are registered in accordance with NYSOFA’s reporting requirements. 21 7. The AAA, or the contractor designated by the AAA, must monitor caregivers to determine the need for additional caregiver support services and facilitates referrals when necessary. 8. The AAA, or the contractor designated by the AAA, must have processes for NFCSP providers (direct or contracted) to alert the AAA of conditions or circumstances that may endanger the caregiver, care receiver, other participants, workers, or volunteers. " (source, capture 3986fc61a025ecbdbf17c49cd105797071f7037063778ade7a2ce6d465e0c8e3)
• /offerings/2/rules: "A. NFCSP Services Eligibility. 1. According to the OAA, the following populations of caregivers are eligible for services under the NFCSP: (a) Adult family members or other informal caregivers aged 18 and older providing care to an individual(s) aged 60 and older. (b) Adult family members or other informal caregivers aged 18 and older, providing care to an individual(s) of any age with Alzheimer’s disease or related disorder. Related disorders include dementia, traumatic brain injury, mild cognitive impairment, and chronic traumatic encephalopathy. (c) Older relatives (not the parents) aged 55 and older, living with, and providing care to a child(ren) under the age of 18. (d) Older relatives (including the parents), aged 55 and older, living with, and 13 providing care to, an adult(s) aged 18 to 59 with disabilities. 2. Caregivers must be assisting the care receiver with two or more ADLs/IADLs to be eligible for respite care under the NFCSP. 3. To provide respite care and supplemental services to family caregivers of adults aged 60 and older or individuals of any age with Alzheimer’s disease or related disorder, the individual for whom they are caring must be determined to be functionally impaired because the individual is unable to perform at least two ADLs without substantial assistance, including verbal reminding, physical cueing, or supervision; or due to a cognitive or other mental impairment, requires substantial supervision because the individual poses a serious health or safety hazard to themselves or others. Caregivers who meet the definition of older relative caregiver are eligible for all five service types. B. Caregiver Assessment. 1. The AAA, or contractor designated by the AAA, must attempt to assess each caregiver who is referred to the NFCSP (using the prescribed caregiver assessment tool) to identify specific needs, barriers to carrying out caregiving responsibilities, and existing supports in place, as reported by the caregiver. This assessment will help the AAA, or contractor designated by the AAA, provide appropriate recommendations for caregiver support services. (a) Caregiver assessments must be conducted by an individual who is trained in case management, as required by NYSOFA. This individual must also meet the criteria outlined in Section III of this PI. (b) A caregiver assessment, as prescribed by NYSOFA, and a caregiver support plan must be completed prior to initiating respite care services. 2. The purpose of the assessment is to document the needs of the caregiver in a holistic manner that results in a support plan for the caregiver. 3. As a result of the types of respite care services received, the care receiver may be required to complete certain assessments and/or paperwork. 4. A caregiver support plan is a person-centered approach to developing a plan of care for supporting the caregiver in consultation with the care receiver. 5. The caregiver support plan must include one or more of the following goals: (a) Reduce caregiver stress. (b) Improve my mental health. (c) Improve my physical health. 14 (d) Feel better supported in my caregiving role. (e) Make more time for myself. (f) Practice self-care. (g) Seek out support. (h) Decrease social isolation. (i) Improve overall financial well-being. (j) Improve understanding of the disease process. (k) Maintain care receiver safely in the home environment. (l) Other. 6. The caregiver support plan shall include a desired outcome(s) and a plan to achieve the goal(s) and outcome(s). Desired outcomes for caregivers may include: (a) Decreased levels of caregiver burden. (b) Improved caregiver mental and physical health. (c) Improved confidence in caregiving abilities. (d) Increased knowledge of community resources. 7. There are additional supplemental tools that may be used with caregivers including the Loneliness Scale, Patient Health Questionnaire (PHQ-9), Nutrition Screen, Generalized Anxiety Disorder Screening Tool (GAD-7), and the CAGE substance abuse screening tool. 8. For open cases, reassessments shall be completed at six and 12 months, or when there is a significant change in the caregiver’s situation. Caregiver program staff shall conduct a brief check-in with the caregiver at three and nine months until the case is closed. (a) A case note shall be completed when staff conduct the brief check-in at three and nine months. (b) The objective of the reassessment is to review all criteria related to assessment findings so adjustments may be made to the caregiver support plan based on the caregiver’s most recent status and situation. (c) The AAA, or contractor designated by the AAA, shall set the policy on how many attempts staff should make to contact the caregiver before closing 15 the case. (d) If a caregiver is on a waitlist for services, the staff shall make regular contact with the caregiver to determine a change in needs. 9. If the caregiver refuses to be assessed, information and assistance, caregiver counseling, caregiver support groups, caregiver training, and supplemental services may still be provided. However, the minimum required data for registered services (caregiver counseling, caregiver training, and supplemental services) must still be collected. (a) For Supplemental Services_Nutrition services (such as home delivered meals or congregate meals) a short Nutrition Screen (Attachment 3) must be completed to account for any food allergies and/or dietary restrictions the caregiver and care receiver may have. 10. If the caregiver assessment identifies additional needs for the care receiver, a referral for an assessment of the care receiver for long-term services and supports (LTSS) may be made with the care receiver’s consent. " (source, capture 3986fc61a025ecbdbf17c49cd105797071f7037063778ade7a2ce6d465e0c8e3)
• /offerings/2/rules: "A. Activities of Daily Living (ADLs). 1. Activities of daily living are basic personal everyday activities including, but not limited to, tasks such as eating, toileting, grooming, dressing, bathing, and transferring. B. Alzheimer’s Disease. 1. Alzheimer’s disease is a type of dementia that affects memory, thinking, and behavior. Symptoms eventually grow severe enough to interfere with daily tasks. C. Caregiver Assessment. 1. Caregiver assessment is a defined process of gathering information to identify the specific needs, barriers to carrying out caregiving responsibilities, and existing supports of a family caregiver or older relative caregiver, as identified by the caregiver involved, to appropriately target recommendations for support services as described in section 373(b) of the OAA. The assessment shall be administered through direct contact with the caregiver, which may include contact through a home visit, the internet, telephone or teleconference, or in-person interaction. D. Caregiver-Directed Care. 1. Caregiver-directed care is an approach to providing services under the OAA 3including programs, benefits, supports, and technology, intended to assist the caregiver and the care receiver, in which: (a) Services (including the amount, duration, scope, provider, and location of such services) are planned, budgeted, and purchased under the direction and control of the caregiver. (b) The caregiver is provided with information and assistance as necessary and appropriate to enable them to make informed decisions about available services. (c) The needs, capabilities, and preferences of the caregiver with respect to such services, and their ability to direct and control the receipt of such services, are assessed by the AAA, or contractor designated by the AAA. (d) Based on the assessment, the AAA, or contractor designated by the AAA, will complete the following with the caregiver and care receiver: (i) Develop a caregiver support plan for the caregiver that specifies which services they are responsible for directing. (ii) Define the role of family members (and others whose participation is sought by the caregiver) in providing services under the caregiver support plan. (iii) Establish and implement a budget for these services. (e) The AAA, or contractor designated by the AAA, provides oversight of the self-directed services that the caregiver is receiving, including steps to ensure the quality of services provided and the appropriate use of funds under the OAA. E. Child. 1. A child is an individual who is not more than 18 years of age. F. Dementia. 1. Dementia is a general term for loss of memory, language, problem-solving, and other thinking abilities that are severe enough to interfere with daily life. Alzheimer's disease is the most common cause of dementia. G. Emergency Respite. 1. Emergency respite is the placement of an in-home respite provider or the temporary placement of the care receiver outside of the home, to substitute for the primary caregiver in the event of an emergency to provide temporary 4relief from the stress and responsibilities associated with providing constant care. H. Family Caregiver. 1. A family caregiver is an adult family member, or another individual, who is an informal provider of in-home and community care to an older individual; an adult family member, or another individual, who is an informal provider of in-home and community care to an individual of any age with Alzheimer’s disease or related disorder; or an older relative caregiver who is aged 55 or older providing support to a child under the age of 18 (not the parent) or an adult aged 18-59 with a disability (may be the parent). For the purpose of these standards, family caregiver does not include individuals whose primary relationship with the older adult is based on a financial or professional agreement. I. Individual With a Disability. 1. An individual with a disability must be between ages 18-59. J. Older Adult. 1. An older adult is a person aged 60 or older. K. Older Relative Caregiver. 1. An older relative caregiver is a caregiver who is aged 55 or older, and lives with, is the informal provider of in-home and community care to, and is the primary caregiver for, a child and/or individual with a disability. (a) In the case of a caregiver of a child: (i) The older relative caregiver is the grandparent, step grandparent, or other relative (other than the parent) by blood, marriage, or adoption, of the child. They are the primary caregiver of the child because the biological or adoptive parents are unable or unwilling to serve as the primary caregivers of the child; and they have a legal relationship to the child, such as legal custody, adoption, or guardianship, or are raising the child informally. (b) In the case of a caregiver of an individual with a disability: (i) The older relative caregiver is the parent, grandparent, or other relative by blood, marriage, or adoption, of the individual with the disability. 5L. Provider. 1. A provider is an organization or person providing services to individuals under a formal contractual or grant arrangement with NYSOFA, the AAA, or contractor designated by the AAA. M. Respite Care Services. 1. Respite care services are services that offer temporary, substitute supports or living arrangements for care receivers to provide a brief period of relief or rest for caregivers. N. Respite Provider. 1. A respite provider is an organization or person providing respite services to caregivers under a formal contractual or grant arrangement with the AAA, or contractor designated by the AAA. O. Respite Voucher. 1. Respite voucher is a service delivery method that provides financial assistance to caregivers for the purchase of respite services (in-home, out-of-home [day], and out-of-home [overnight]). P. Volunteer. 1. A volunteer is a person who performs a service without financial compensation for an individual or community organization. " (source, capture 3986fc61a025ecbdbf17c49cd105797071f7037063778ade7a2ce6d465e0c8e3)
• /offerings/2/access/0: "Area Agencies on Aging (AAAs) are the gateway to home and community-based services that help older New Yorkers age in place." (source, capture 22f4e7a7f4b2202b02a0d7287f85f3e31a876981223d060e0e990cbc8cae81f8)
• /offerings/2/access/0: "AAAs provide important services such as home-delivered meals, congregate meals, nutrition counseling, health insurance counseling, caregiver support services, and much more." (source, capture 22f4e7a7f4b2202b02a0d7287f85f3e31a876981223d060e0e990cbc8cae81f8)
• /offerings/2/access/0: "Find an Office" (source, capture 22f4e7a7f4b2202b02a0d7287f85f3e31a876981223d060e0e990cbc8cae81f8)
• /offerings/2/access/1: "If you answered yes to any of the questions above, you are eligible for the National Family Caregiver Support Program (NFCSP). The goal of the NFCSP is to support family caregivers so they may continue to carry out their caregiving roles and responsibilities. The program can provide services such as caregiver counseling, information and assistance, caregiver training, respite care (a break from caregiving), and much more. If you would like to learn more about how this program can assist you, please contact the Cortland County Office for Aging’s Caregiver Resource Center at 1(607)753-5060." (source, capture a26bcb4020cbdd01e13d95f78a772437f8f2faad490c50e089c0d9ebc2c160bb)