A Guide for Support Partners

National MS Society. "A Guide for Support Partners." 2019.

Key findings used in wiki

• The guide shows how neurological caregiving can be variable as well as progressive: support partners may need to take over and give back responsibilities repeatedly as abilities change.
• It recommends re-evaluating schedules and task assignments over time rather than assuming one stable care arrangement will hold.
• For home adaptation, it advises asking for occupational therapy and physical therapy home visits before major renovations so changes preserve independence and reduce caregiver strain.
• It also emphasizes that caregivers can and should ask the medical team for training in symptom management, transfers, and other difficult care tasks.
• The guide is especially useful for the wiki's broader neurodegenerative page because that page includes multiple sclerosis alongside ALS, Parkinson's, and related conditions.