Assessments¶
GiveCare uses four validated instruments, administered progressively to build a complete picture of caregiver wellbeing without overwhelming anyone at signup.
Instrument overview¶
| ID | Name | Items | Time | Framing | Administration |
|---|---|---|---|---|---|
sdoh6 |
SDOH six-domain snapshot | 6 (1 per zone) | ~2 min | Deficit | At SMS signup |
ema3 |
Daily wellbeing micro-check | 3 | ~30 sec | Mixed | Daily via SMS |
cwbs14 |
Caregiver Well-Being Scale, short form | 14 | ~5 min | Strength | Monthly via SMS |
sdoh30 |
GC-SDOH-30 adaptive deep-dive | Up to 30 (5 per zone) | 5-6 min | Deficit | Per flagged zone |
SDOH-6 snapshot (sdoh6)¶
One question per zone, providing a quick baseline across all six dimensions. Takes approximately 2 minutes. Administered at SMS signup to immediately identify which zones need attention.
The snapshot determines which zones warrant a full deep-dive via the GC-SDOH-30.
EMA-3 daily check (ema3)¶
Three daily items delivered via SMS:
- Stress — current pressure level (deficit-framed)
- Mood — emotional state (strength-framed)
- Coping — perceived ability to manage (strength-framed)
Designed for ecological momentary assessment — capturing state in the moment rather than retrospective recall. Short enough to complete in a single SMS exchange without creating additional caregiver burden.
EMA-3 data feeds the GiveCare Score daily, enabling trend detection and spike alerts.
CWBS-14 (cwbs14)¶
The Caregiver Well-Being Scale short form. 14 items scored 1-5, measuring positive caregiver capacity.
Copyright: Susan Tebb, Marla Berg-Weger, Doris M. Rubio (1999, revised 2012)2.
Citation: Tebb SC, Berg-Weger M, Rubio DM. "The Caregiver Well-Being Scale Revisited." Health & Social Work 38(4), 2013.
This is the only strength-framed instrument in the battery. It measures what is working — social support quality, self-efficacy, life satisfaction — rather than what is breaking down. Administered monthly to track positive capacity over time.
GC-SDOH-30 (sdoh30)¶
The flagship assessment. 30 questions across 6 zones, 5 questions per zone, on a 5-point scale (0-4, deficit-framed). Estimated completion: 5-6 minutes.
Evidence base¶
The GC-SDOH-30 adapts validated clinical SDOH instruments for caregiver populations:
| Source | Domains informed |
|---|---|
| PRAPARE3 | P1 (Social Support), P3 (Housing), P4 (Financial) |
| AHC Screening4 | P3 (Housing), P4 (Financial) |
| USDA Food Security Survey Module | P4 (Financial) |
| NAM SDOH Framework5 | Overall structure, domain selection |
| CMS Social Determinants Guidelines | Framing, clinical integration approach |
Adaptive administration¶
The GC-SDOH-30 is not administered as a monolithic 30-question block. It is administered selectively per flagged zone:
- The SDOH-6 snapshot identifies zones scoring below threshold
- Only flagged zones receive the full 5-question deep-dive
- A caregiver with one flagged zone answers 5 additional questions, not 30
This adaptive approach respects caregiver time and cognitive load while ensuring depth where it matters.
Zone mapping¶
| Zone | Domain | Questions |
|---|---|---|
| P1 | Social Support | 5 |
| P2 | Physical Health | 5 |
| P3 | Housing & Environment | 5 |
| P4 | Financial Resources | 5 |
| P5 | Legal & Navigation | 5 |
| P6 | Emotional Wellbeing | 5 |
See Zones (P1-P6) for zone definitions, weights, and scoring thresholds.
Open source¶
The GC-SDOH-30 is open-sourced in the care-tools/ repository, available for other organizations working with caregiver populations. See the SDOH Framework for the conceptual rationale.
Progressive administration flow¶
flowchart TD
A["Website visit"] -->|"BSFC-s (10 items)"| B["Initial burden estimate"]
B --> C["SMS signup"]
C -->|"SDOH-6 (6 items)"| D["Zone baseline"]
D -->|"CWBS-14 monthly"| E["Wellbeing tracking"]
E -->|"EMA-3 daily"| F["Trend monitoring"]
F -->|"SDOH-30 per flagged zone"| G["Targeted deep-dive"]
The instruments are sequenced to:
- Minimize initial friction — BSFC-s1 on the website is the lightest entry point
- Build trust before depth — SDOH-6 at signup, full SDOH-30 only after engagement
- Match frequency to volatility — EMA-3 daily (mood changes fast), CWBS-14 monthly (wellbeing shifts slowly)
- Target depth where needed — SDOH-30 only for flagged zones, not blanket assessment
All instrument scores feed into the composite GiveCare Score.
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Graessel E et al. "Burden Scale for Family Caregivers (BSFC-s)." University of Erlangen. Source → ↩
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Tebb SC, Berg-Weger M, Rubio DM. "The Caregiver Well-Being Scale Revisited." Health & Social Work 38(4), 2013. Source → ↩
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NACHC. "PRAPARE Implementation and Action Toolkit." 2019. Source → ↩
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CMS. "Accountable Health Communities Health-Related Social Needs Screening Tool." Source → ↩
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NAM. "Social Determinants of Health Framework." 2017. Source → ↩