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National Alliance for Caregiving

The National Alliance for Caregiving (NAC) is a nonprofit caregiving organization focused on research, innovation, advocacy, and coalition-building. Its own public site foregrounds research hubs, policy briefs, advocacy toolkits, and caregiver resources rather than a direct-service helpline2. NAC is also best known as the co-author (with AARP) of the "Caregiving in the United States" survey series1, one of GiveCare's foundational public sources.

NAC operates differently from direct-service organizations like the Eldercare Locator or Family Caregiver Alliance. Rather than centering helplines or support groups, NAC works at the systems level — producing research, policy material, guidebooks, and coalition infrastructure that shape caregiver policy and programs2. Its role in the national caregiver strategy process also underscores that it is a recognized systems-level participant in caregiver policy, not just a publisher of surveys3.

The organization's research covers demographics, economic impact, health outcomes, condition-specific populations, and the intersection of caregiving with employment and policy. NAC's public site also highlights open data, reports, and “Caregiving in the U.S.” toolkits, which is why the organization is so central to the public evidence base across this wiki2.

For individual caregivers, NAC's website at caregiving.org is most useful as a research and policy portal: it provides access to published reports, caregiver guidebooks, policy material, and collaborative programs rather than one-on-one case navigation2.

NAC addresses all zones through its research and advocacy work, though not through direct services. Its reports and policy material touch social isolation (P1), caregiver health (P2), housing and community support (P3), financial strain (P4), system navigation (P5), and emotional wellbeing (P6). For GiveCare specifically, NAC's data and policy work serve as primary public evidence inputs across the wiki.

NAC also runs a Transplant Caregiving Collaborative, which has produced a three-part research series documenting the unmet needs of transplant caregivers4, surveying caregiver programs across 114 U.S. transplant centers5, and brief-ing on disparities and policy levers such as the CARE Act and Medicare Caregiver Training Services billing codes6. That work is the primary public evidence base for Transplant Caregiving in this wiki.

  1. AARP/NAC. "Caregiving in the United States 2025." Source → ↩

  2. National Alliance for Caregiving. "Research, Policy, and Caregiver Resources." Source → ↩↩↩↩

  3. HHS. "National Strategy to Support Family Caregivers." Source → ↩

  4. National Alliance for Caregiving. "Transplant Caregiving in the U.S.: A Call for System Change." 2023. Source → ↩

  5. National Alliance for Caregiving. "Gaps and Opportunities: Family Caregiver Programs in U.S. Transplant Centers." 2024. Source → ↩

  6. National Alliance for Caregiving. "The Family Caregiver Gap: Disparities and Missed Opportunities in Support Services Across U.S. Transplant Centers." 2025. Source → ↩